NF Midwest has awarded three $1,000 post-secondary academic scholarships and one new Distinguished Service Scholarship to four adults affected by neurofibromatosis or schwannomatosis. The program awards scholarships to students from our service area who are diagnosed with NF and are pursuing college degrees or certificates. This year the NF Midwest Board established a special Distinguished…
Read MoreA Look Back at our 2020 Scholarship Winners – 2021 Applications Now Open
In 2020, NF Midwest awarded $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the seventh year for NF Midwest’s scholarship program which was piloted with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards scholarships to students from our service area who…
Read More2019 Scholarship Recipients
In 2019, NF Midwest awarded $1,000 academic scholarships to ten adults affected by neurofibromatosis or schwannomatosis. This is the fifth year for NF Midwest’s scholarship program which was piloted with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards scholarships to students from our service area who…
Read MoreSpring 2019 Neurofibromatosis Midwest Newsletter
Check out our Spring 2019 NF Midwest Newsletter! The highlights of this issue include… Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Back Page SPRING 2019 NEWSLETTER
Read More10 Ways You Can Help Your Favorite Nonprofits!
Which nonprofits have you wanted to help this year? You probably have a list of your favorites! Supporting those meaningful causes may be easier than you think. As Executive Director of Neurofibromatosis (NF) Midwest, I’ve learned that people are an organization’s greatest asset and have the greatest power to advance a cause like neurofibromatosis. You may…
Read More2018 Scholarship Recipients
Neurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth year for NF Midwest’s scholarship program which was piloted with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards scholarships to students from our service area who…
Read MoreNational Pain Society Award Given to NF Pain Researcher
Frank Buono, PhD, one of our NF Midwest community members and recent speaker at NF Midwest’s November symposium, has been named as a recipient of a Young Investigators Travel Award from the American Pain Society. This is a great honor for him, but also a significant moment for neurofibromatosis as Dr. Buono’s work is on the evaluation of…
Read More2017 Scholarship Recipients
Neurofibromatosis Midwest is proud to announce our eleven scholarship recipients for the 2017-2018 academic year. Now in it’s third year, our scholarship program was launched with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards $1,000 scholarships to students from our service area who are diagnosed with…
Read MoreA Special Letter From An NF Mom
From Jenn, mom of Audrey, a 5-year-old with NF1 I think your daughter might have a condition called neurofibromatosis. Don’t Google it. Look at me….. DON’T Google it. We’re All In this Together: Make a Donation Now Do you remember the first time you heard the word “neurofibromatosis”? Did you ignore your doctor’s advice and…
Read MoreHappy Haddie Says #TheWordIs
Join “Happy Haddie” and the “CrazyTwins” in the campaign to spread the word! What’s the word? #TheWordIs neuro-fibroma-tosis! Take your video of people saying the word (or mangling the word) neurofibromatosis and share it using the hashtage #TheWordIs. Be sure to share a link such as this one at www.nfmidwest.org so that people can learn…
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