Which nonprofits have you wanted to help this year? You probably have a list of your favorites! Supporting those meaningful causes may be easier than you think. As Executive Director of Neurofibromatosis (NF) Midwest, I’ve learned that people are an organization’s greatest asset and have the greatest power to advance a cause like neurofibromatosis. You may…
Read More2018 Scholarship Recipients
Neurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth year for NF Midwest’s scholarship program which was piloted with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards scholarships to students from our service area who…
Read MoreNational Pain Society Award Given to NF Pain Researcher
Frank Buono, PhD, one of our NF Midwest community members and recent speaker at NF Midwest’s November symposium, has been named as a recipient of a Young Investigators Travel Award from the American Pain Society. This is a great honor for him, but also a significant moment for neurofibromatosis as Dr. Buono’s work is on the evaluation of…
Read More2017 Scholarship Recipients
Neurofibromatosis Midwest is proud to announce our eleven scholarship recipients for the 2017-2018 academic year. Now in it’s third year, our scholarship program was launched with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards $1,000 scholarships to students from our service area who are diagnosed with…
Read MoreA Special Letter From An NF Mom
From Jenn, mom of Audrey, a 5-year-old with NF1 I think your daughter might have a condition called neurofibromatosis. Don’t Google it. Look at me….. DON’T Google it. We’re All In this Together: Make a Donation Now Do you remember the first time you heard the word “neurofibromatosis”? Did you ignore your doctor’s advice and…
Read MoreHappy Haddie Says #TheWordIs
Join “Happy Haddie” and the “CrazyTwins” in the campaign to spread the word! What’s the word? #TheWordIs neuro-fibroma-tosis! Take your video of people saying the word (or mangling the word) neurofibromatosis and share it using the hashtage #TheWordIs. Be sure to share a link such as this one at www.nfmidwest.org so that people can learn…
Read MoreSpring 2017 Neurofibromatosis Midwest Newsletter
Check out our Spring 2017 NF Midwest Newsletter! The highlights of this issue include… Plus much more! SPRING 2017 NEWSLETTER
Read MoreMeet Our 2016 Scholarship Recipients!
Neurofibromatosis Midwest is proud to announce our seventeen scholarship recipients for the 2016-2017 academic year. Now in its second year, our scholarship program was launched with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards $1,000 scholarships to students from our service area who are diagnosed with…
Read MoreSpring 2016 Neurofibromatosis Midwest Newsletter
This newsletter published in May 2016 features our new logo and a slightly new newsletter design. The highlights of this issue include… An article on how NF Midwest is leading the fight for better options in treating dermal neurofibromas and the new procedural codes that we helped get approved; the exciting introduction of our new NF Navigator/Social Worker, Jasmine Mitchell…
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