Living with neurofibromatosis or schwannomatosis can bring unique challenges, but you don’t have to navigate them alone. We offer a variety of programs that connect you with experts and peers, creating a supportive community where you can learn, share, and feel understood.
NF Conversations
Join our online and in-person conversations to connect with others who understand. These conversations are a safe space to share experiences, ask questions, and build lasting friendships with people on a similar journey.



