Category: General

With a few key words and the push of the enter key you can search pretty much any topic you can think of. Although this instant access to information is amazing it can also lead to confusion especially in the world of neurofibromatosis (NF). Several NF organizations recognized the need to work together to address…

Insurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit of explanation or claim statement when they receive them in the mail. It is so important to read them and make sure they are correct. I was once charged for a service I never received…

Over 200 agencies and organizations such as The United Way, Community Action, and Goodwill just to name a few have banded together to create what they call 211. 211 is a non-emergency service that is available 24/7 and links its users to a referral specialist in their location. All a user has to do is…

Many have heard the expression “It’s not what you know. It’s who you know.” That rings true when it comes to figuring out who to contact if you need certain resources. Many states and counties vary greatly on what resources/programs are available. Each program can also have different eligibility and income requirements, so it is…

Last year the NF Midwest Board established a special Distinguished Service Scholarship Award, which provides extra funds to applicants who have demonstrated an outstanding contribution to the NF cause and the mission of NF Midwest. Going forward, this special scholarship will not be awarded annually but by merit. The NF Midwest Board will evaluate applicants…

Check out our Summer 2021 NF Midwest Newsletter! The highlights of this issue include… Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Back Page

NF Midwest has awarded three $1,000 post-secondary academic scholarships and one new Distinguished Service Scholarship to four adults affected by neurofibromatosis or schwannomatosis. The program awards scholarships to students from our service area who are diagnosed with NF and are pursuing college degrees or certificates. This year the NF Midwest Board established a special Distinguished…

In 2020, NF Midwest awarded $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the seventh year for NF Midwest’s scholarship program which was piloted with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards scholarships to students from our service area who…

In 2019, NF Midwest awarded $1,000 academic scholarships to ten adults affected by neurofibromatosis or schwannomatosis. This is the fifth year for NF Midwest’s scholarship program which was piloted with funds from a charitable trust left to NF Midwest by Frances and Irma Napolilli. The program awards scholarships to students from our service area who…

Check out our Spring 2019 NF Midwest Newsletter! The highlights of this issue include… Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Back Page SPRING 2019 NEWSLETTER