A budget friendly way to plan your giving throughout the year. Monthly giving, also known as recurring giving, is a form of charitable giving where you can make regular, ongoing contributions to a nonprofit organization. Instead of making a one-time donation, you can commit to making a monthly gift of a specified amount, typically through…
Read MoreDo it Your Way Fundraising: Doesn’t Have to be Difficult or Time Consuming.
Fundraising is an essential part of keeping organizations operating to continue their mission of research, support, and advocacy. Events such as galas, walks and concerts can help to raise funds, however big events are not the only way to make a big impact. Do-it-Your Way fundraisers, no matter how big or small, can make a…
Read MoreSpotlight on Hosting a DIY Event: E’s Hulksters
The captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event was like! How did you decide on a trivia night? DH: Trivia Nights have been a fun outing with our friends & family in the past, and we thought that we could put on a pretty…
Read MoreShow Your Stripes: Awareness for Rare Disease Day
Between 25-30 million Americans are living with a rare disease according to the National Organization for Rare Disease (NORD). A disease is considered to be rare when it affects less than 1 in 2,000 people. As of today, there are over 7000 rare diseases. People living with a rare disease often face isolation, lack of support and…
Read MoreNF Collective: Providing Reliable Information for Neurofibromatosis
With a few key words and the push of the enter key you can search pretty much any topic you can think of. Although this instant access to information is amazing it can also lead to confusion especially in the world of neurofibromatosis (NF). Several NF organizations recognized the need to work together to address…
Read MoreWhat to Do if You Have an Insurance Issue
Insurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit of explanation or claim statement when they receive them in the mail. It is so important to read them and make sure they are correct. I was once charged for a service I never received…
Read More211 Call Line to Find Resources
Over 200 agencies and organizations such as The United Way, Community Action, and Goodwill just to name a few have banded together to create what they call 211. 211 is a non-emergency service that is available 24/7 and links its users to a referral specialist in their location. All a user has to do is…
Read MoreResources for Common Needs
Many have heard the expression “It’s not what you know. It’s who you know.” That rings true when it comes to figuring out who to contact if you need certain resources. Many states and counties vary greatly on what resources/programs are available. Each program can also have different eligibility and income requirements, so it is…
Read More2022 Scholarship Recipients
Last year the NF Midwest Board established a special Distinguished Service Scholarship Award, which provides extra funds to applicants who have demonstrated an outstanding contribution to the NF cause and the mission of NF Midwest. Going forward, this special scholarship will not be awarded annually but by merit. The NF Midwest Board will evaluate applicants…
Read MoreSummer 2021 NF Midwest Newsletter
Check out our Summer 2021 NF Midwest Newsletter! The highlights of this issue include… Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Back Page
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