Community Conversations are a place to connect, learn, and feel understood. They’re designed for individuals and families affected by neurofibromatosis (NF) and offer a welcoming, supportive space to share experiences and build community.

Online Conversations

NF Midwest online Community Conversations are held virtually and may meet regularly or as needed. Some are ongoing groups created for specific communities or life stages, while others are formed around a shared topic or interest. These conversations are informal, supportive, and focused on connection. Many sessions also include an NF expert who can offer insight and answer questions.

Community Conversations

NF Midwest Community Conversations are in-person and bring individuals and families affected by NF together in a welcoming, relaxed setting. These gatherings are conversational by design, guided by the interests, questions, and experiences of those in the room. With opportunities to learn from professionals and connect with others who understand, each conversation is unique—and shaped by the community itself.

Upcoming Conversations

  • NF1 Peer Conversations

    Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest,…

    When Tuesday April 28 7:00 pm – 8:00 pm Where Online Learn More

Have an Idea for a Conversation?

Our event topics are inspired by you! If there’s something you’d like to learn more about or a speaker you’d like to hear from, please let us know. We value your input and want to make these conversations as helpful as possible for the NF community.

Suggest a Topic

Help Us Bring the Community Together

Your support makes events like our Community Conversations possible. A donation of any amount helps us provide essential resources, education, and support to individuals and families living with NF.

Donate Today