Connection is at the heart of
everything we do.

Living with neurofibromatosis or schwannomatosis, or caring for someone who is, comes with unique challenges and triumphs. Finding others who understand your journey can make all the difference. We’re here to connect you with a supportive network of individuals and families throughout the Midwest who are navigating life with NF.

Join Our Community

Become a part of our growing family. By joining our community, you’ll receive the latest news, event invitations, and resources directly to your inbox. It’s the best way to stay informed and connected with everything happening at NF Midwest.

Share Your Story

Your story has the power to inspire hope and build understanding. Sharing your experience can be a meaningful way to connect with others, raise awareness about NF, and show the world the strength of our community. We’d be honored to hear from you.

A Quick Note About Our Nosiness

Throughout NF Midwest’s website, you’ll see forms that ask for basic information. We collect this information so we can stay in touch, share updates that matter to you, and better understand the needs of our community. We respect your privacy—your information is never sold or shared with others.

Help Us Strengthen Our Community

Your support helps us provide vital programs and build a strong, connected community for everyone affected by NF in our region. Every contribution makes a difference.

Explore Ways to Give