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NF Midwest has been a true blessing. My husband and my son have Neurofibromatosis . We didn't know who to talk to for doctors and support. My husband has NF 1, he is a Veteran . And goes to VA hospital. Our son has NF 1. He has had to have surgeries to remove fibros . We have run into many obstacles. As NF family we need to talk to people who have gone threw what we were, emotionally. Physical and financially . Without support of NF Midwest I don't know where we be now.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.