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NF Midwest has been a true blessing. My husband and my son have Neurofibromatosis . We didn't know who to talk to, doctors and support. My husband has NF 1, he is a Veteran . And goes to VA hospital. Our son has NF 1. He has had to have surgeries to remove fibros . We have run into many obsticals. As NF family we need to talk to people who have gone threw what we where, emotionally. Physical and financially . Without Support of NF Midwest I don't know where we be now.
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