Celebrating 35 Years


2018 Year in Review

Our 2018 financial statement is complete and we’ve taken time to look back at the year in review! It was…

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Camp New Friends 2019

If you have a child with neurofibromatosis, please consider sending them to Camp New Friends. Now is the time to…

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Young Adult Leadership Program

Because the neurofibromatosis cause needs New Fighters and young iNFluencers! See photos This January I had the extreme privilege of…

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Another $15 Million for NF Research

This past February, NF Midwest brought volunteers to Washington DC to once again advocate for federal dollars for neurofibromatosis type…

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