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Walk4NF Your Way
If there isn’t a walk in your area, you can still be a part of the movement! With our NF Your Way program, you can create a challenge for yourself like walking 50 miles in…
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NF1 Peer Conversations
Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest,…
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NF Parent Conversations
Connecting with others who understand your journey can make all the difference. Our Parent Community Conversations offer a welcoming online space for parents and caregivers affected by NF to share experiences, ask questions, and build…
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Power Hour: Tumors in NF1
At this NF Power Hour, Dr. Miriam Bornhorst, a neuro-oncologist at Lurie Children’s Hospital will provide an overview of the various types of tumors associated with Neurofibromatosis Type 1 (NF1), including cutaneous neurofibromas, plexiform neurofibromas,…
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Power Hour: Plexiform Neurofibromas in Adults with NF1
At this NF Power Hour, Dr. Angela Hirbe, a medical oncologist who treats adults with NF at Washington University in St. Louis will discuss plexiform tumors with a focus on adults with NF. This session…
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St. Louis Walk4NF
Get ready for the first St. Louis Walk4NF at Queeny Park! It’s more than a walk; it’s a powerful reminder that No one Fights alone!
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Young Adult Leadership Advocacy Week in DC
Ready to make your voice heard? Young adults ages 18-30 who are selected for the next Young Adult Leadership Program cohort will have the opportunity to participate in Advocacy Week in Washington, DC. Participants will…