All Upcoming Events

  • 7 Simple Strategies for Sibling Support

    Siblings of children with Neurofibromatosis play important roles in their families, and often experience similar concerns and opportunities as parents. This interactive session by Emily Holl, Director of the national Sibling Support Project, will present…

    When Tuesday April 21 7:00 pm – 8:00 pm Where Online Learn More
  • NF1 Peer Conversations

    Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest,…

    When Tuesday April 28 7:00 pm – 8:00 pm Where Online Learn More
  • Walk4NF Madison, WI

    Join us for food, music, a raffle, a silent auction, and a stroll through Middleton! Get ready for the annual Madison Walk4NF and support those with neurofibromatosis!

    When Saturday May 9 9:00 am – 1:00 am Where Capital Brewery Learn More
  • Walk4NF Indianapolis, IN

    Get ready for the annual Indianapolis Walk4NF and support those with neurofibromatosis! Join us for food, music, a raffle, a silent auction, and a stroll through Indianapolis!

    When Saturday May 16 9:00 am – 1:00 pm Where White River State Park Learn More
  • Walk4NF Columbia, MO

    Get ready for the annual Columbia Walk4NF and support those with neurofibromatosis! Join us for food, music, a raffle, a silent auction, and a stroll through Columbia!

    When Saturday May 30 9:00 am – 12:30 pm Where Gordon Shelter @ Stephens Lake Park Learn More
  • Walk4NF Naperville, IL

    Get ready for the annual Naperville Walk4NF and support those with neurofibromatosis! Join us for food, music, a raffle, a silent auction, and a stroll through Naperville!

    When Saturday June 6 8:30 am Where Riverwalk Grand Pavillion Learn More
  • Camp NF at Brainy Ridge

    A 7-day, 6-night residential summer camp for children and teens living with Neurofibromatosis Type 1, NF2-Related Schwannomatosis, and other Schwannomatosis. Medical staff, including physicians, nurses, social workers, and psychologists, are on-site 24 hours a day….

    When Sunday – Saturday July 19 – 25 Where Blue Ridge School Learn More