NF Midwest is working to make the world a better place to live for everyone with neurofibromatosis and schwannomatosis. Everyone needs a helping hand, a listening ear, and an understanding heart at some point in their lives. And it’s our goal to be there when you need us most.

Our Mission

Founded in 1981, NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education, and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and Missouri.

NF Midwest C.A.R.E.S.!

Our Vision – No One Fights Alone

NF Midwest is led by individuals with personal experience navigating the challenges of NF. While we fight for treatments, our vision is that our loved ones always have a place for support, education, and care, that they always have hope, and that they never fight alone.