Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 2nd        • Madison, WI – May 16th
• Naperville, IL – June 6th           • Fort Wayne, IN – October 17th

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The Faces of Neurofibromatosis

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Resiliency for NF Study for Adults

Resiliency for NF Study for Adults The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical and Research Program…

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Upcoming Event : TeeUp4NF at TopGolf

In a little more than 2 weeks NF Midwest will be hosting our Annual TeeUp4NF at TopGolf Naperville. Our last…

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DIY Fundraising Event-Hoosier Crane

We get asked all the time, “What is a DIY fundraising event?” Well here is a perfect example of one!…

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University of Wisconsin Looking for 4 to 6 Year Olds with NF1

Bonnie Klein-Tasman, PhD and her team at the University of Wisconsin in Milwaukee are seeking children ages 4 to 6…

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We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Resiliency for NF Study for Adults

Resiliency for NF Study for Adults The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical and Research Program…

Upcoming Event : TeeUp4NF at TopGolf

In a little more than 2 weeks NF Midwest will be hosting our Annual TeeUp4NF at TopGolf Naperville. Our last…

DIY Fundraising Event-Hoosier Crane

We get asked all the time, “What is a DIY fundraising event?” Well here is a perfect example of one!…

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