Celebrating 35 Years
neurofibromatosis walk

2021 Walk4NF YOUR WAY

Join us virtually as we Walk4NF YOUR WAY! Safely meet up with friends or family and have fun!

REGISTER NOW!

The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

Donate Now

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


https://www.nfmidwest.org/wp-content/uploads/2012/07/participate-in-research-posts-background-01-400x240.jpg

NF Study of Genetic Mutations

Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2021/07/Scholars-2021-400x240.jpg

2021 Scholarship Recipients and Distinguished Service Award

NF Midwest has awarded three $1,000 post-secondary academic scholarships and one new Distinguished Service Scholarship to four adults affected by…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2021/06/NF1-Clinical-Trial-400x240.png

Participate in NF1 Pain Study/App

If you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2021/05/2021-NF1-Diagnostic-Criteria-Update-600x315-1-400x240.png

2021 NF1 Diagnostic Criteria Update

An update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2020/05/nfya-accepting-applications-400x240.jpg

2022 Young Adult Leadership Program

Are you a young adult living with NF and want to make a difference in your community? In addition to…

Continue Reading
More Articles

NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

NF Study of Genetic Mutations

Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…

2021 Scholarship Recipients and Distinguished Service Award

NF Midwest has awarded three $1,000 post-secondary academic scholarships and one new Distinguished Service Scholarship to four adults affected by…

Participate in NF1 Pain Study/App

If you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis