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2021 Great Steps Walks 4NF Information

2021 Great Steps Walk 4NF Information coming soon!

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The Faces of Neurofibromatosis

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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2021 Scholarship Applications Now Being Accepted

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…

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NF Power Hours on SSDI, Medicaid, Medicare, and More!

NF Midwest, NF Northeast, and Texas NF are excited to bring two special NF Power Hours to their NF communities. These are…

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Optic Pathway Gliomas (Revised Article)

Optic pathway gliomas are benign (low grade) pilocytic tumors. They may involve any location in the optic pathway, starting on…

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NF Midwest Co-Funds New NF2 Gene Therapy Project

Thanks to the support of our donors, NF Midwest is proud to be one of four NF organizations collaborating to…

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20 Million Secured for NF Research!

We did it! We’re pleased to announce that $20 million in federal funding has been secured for the Neurofibromatosis Research…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

2021 Scholarship Applications Now Being Accepted

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…

NF Power Hours on SSDI, Medicaid, Medicare, and More!

NF Midwest, NF Northeast, and Texas NF are excited to bring two special NF Power Hours to their NF communities. These are…

Optic Pathway Gliomas (Revised Article)

Optic pathway gliomas are benign (low grade) pilocytic tumors. They may involve any location in the optic pathway, starting on…

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