Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 4th          • Madison, WI – May 18th;
• Naperville, IL – June 1st            • Fort Wayne, IN – Sept 21st

REGISTER

The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

Donate Now

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


https://www.nfmidwest.org/wp-content/uploads/2019/10/nf2-biosolutions_final-400x240.png

iNFo Fair 2019: NF2 BioSolutions

NF Midwest is pleased and excited to have Mr. John Manth presenting at our November Symposium.  As a father and…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2014/09/Sandra-Cushner-Weinstein-RPT-LCSW-C-400x240.jpg

iNFo Fair 2019: Encouraging Social Connections

We’re so excited to have a family and kid favorite, Sandra Cushner-Weinstein LICSW, returning to speak at our November 9th…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2019/10/Kesterson-400x240.jpg

iNFo Fair 2019: Gene Editing and Gene Therapy

If you’re paying any attention to medical research you’ve probably been hearing more and more about gene editing and gene…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2019/09/peng400x320-400x240.jpg

iNFo Fair 2019: Auditory Brainstem and Cochlear Implantation

For many newly diagnosed NF2 patients the first question that usually comes to mind is “Am I going to lose…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2017/12/Frank-Buono-400x320-400x240.jpg

New Study Results on Pain and Patients with Neurofibromatosis Type 1

Frank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…

Continue Reading
More Articles

NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

iNFo Fair 2019: NF2 BioSolutions

NF Midwest is pleased and excited to have Mr. John Manth presenting at our November Symposium.  As a father and…

iNFo Fair 2019: Encouraging Social Connections

We’re so excited to have a family and kid favorite, Sandra Cushner-Weinstein LICSW, returning to speak at our November 9th…

iNFo Fair 2019: Gene Editing and Gene Therapy

If you’re paying any attention to medical research you’ve probably been hearing more and more about gene editing and gene…

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis


Follow by Email
Facebook
Facebook
YouTube
LinkedIn