42 Years of Care and Ensuring No One Fights Alone!

2024 iNFo Fair

Saturday, October 26th in Naperville, IL

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NF Midwest has a new fall fundraising and awareness campaign kicking off on October 1st called Champions of the Fall (COTF).

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NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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FDA Grants Priority Review for Mirdametinib for the Treatment of Adults and Children with NF1-PN

Press Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…

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Video Series: Managing NF1 Plexiform Tumors

NeurologyLive recently posted a video series Managing Neurofibromatosis Type 1 Related Plexiform Neurofibroma in Patients of Different Ages. The series…

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Existing Drug Shows Promise as Treatment for NF2- Related Schwannomatosis

There’s some exciting news for those with NF2-related schwannomatosis (NF2-SWN) that might bring hope to treatment options! A recent study…

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Apply to the 2025 NF Young Adult Leadership Program

Are you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance…

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Unleash Your Impact: DIY Fundraising Spotlight

NF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…

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Stay Informed with NF Midwest See All NF Posts

Ben’s Trip to Camp

Each year NF Midwest provides the opportunity for families to apply for scholarships for their son or daughter to attend…

FDA Grants Priority Review for Mirdametinib for the Treatment of Adults and Children with NF1-PN

Press Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…

Video Series: Managing NF1 Plexiform Tumors

NeurologyLive recently posted a video series Managing Neurofibromatosis Type 1 Related Plexiform Neurofibroma in Patients of Different Ages. The series…

Existing Drug Shows Promise as Treatment for NF2- Related Schwannomatosis

There’s some exciting news for those with NF2-related schwannomatosis (NF2-SWN) that might bring hope to treatment options! A recent study…

Apply to the 2025 NF Young Adult Leadership Program

Are you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance…

Meet the Faces of NF Care

Have you seen our new video series called Meet the Faces of NF Care? This series is designed to give…

Ready Set Go FOR IT – North Shore Century Ride

Dust off your rising helmet and join us as we team up with the Children’s Tumor Foundation to raise funds…

The Loss of an NF Legend: Dr. Vincent Riccardi

We are deeply saddened by the passing of Dr. Vincent “Vic” Riccardi, a pioneering expert in neurofibromatosis (NF) research and…

2024 Scholarship Recipients

The NF Midwest Scholarship Program is proud to add another year of empowering students with neurofibromatosis (NF) to achieve their…

THANK YOU! YOU ARE ON FIRE!🔥

We are absolutely thrilled to share some amazing news: thanks to your incredible generosity, you’ve raised an outstanding $144,024 for…

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