Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 2nd        • Madison, WI – May 16th
• Naperville, IL – June 6th           • Fort Wayne, IN – October 17th

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The Faces of Neurofibromatosis

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NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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NF Midwest Collaborates to Fund NF2 Gene Therapy Research

NF Midwest, NF Northeast and NF2 BioSolutions have joined forces to fund an NF2 Gene Therapy Research Study at the…

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2020 Scholarship Applications Now Being Accepted

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…

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Camp New Friends 2020

If you have a child with neurofibromatosis consider sending them to Camp New Friends. Now is the time to sign…

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Article: Study Shows More Fatigue in Neurofibromatosis Type 1

An interesting article was just published in the Journal of Paediatric and Child Health called “Perceived fatigue in children and…

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Two Research Studies on Pain in NF1 Looking for Participants

My name is Frank Buono and I am an Associate Research Professor at Yale School of Medicine.  About a year…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

NF Midwest Collaborates to Fund NF2 Gene Therapy Research

NF Midwest, NF Northeast and NF2 BioSolutions have joined forces to fund an NF2 Gene Therapy Research Study at the…

2020 Scholarship Applications Now Being Accepted

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…

NF Merchandise store; neurofibromatosis

Camp New Friends 2020

If you have a child with neurofibromatosis consider sending them to Camp New Friends. Now is the time to sign…

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