Celebrating 35 Years
neurofibromatosis walk

The Walk That Wasn't Coming Together While Staying Apart

Join us in raising FUNds and Awareness in the time leading up to October 17th when with will have an online community CELEBRATHON!

REGISTER NOW!

The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Reproductive Options in NF1, NF2, and Schwannomatosis (Revised Article)

People who themselves have been diagnosed with NF1, NF2 and Schwannomatosis, or who have a child with one of these…

Continue Reading
More Articles
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New Study – Improving Peer Relationships in Teens with NF1

Are you interested in participating in a new study to examine the effectiveness of a  telehealth group for improving peer…

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More Articles
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NF1 and Velopharyngeal Insufficiency

Velopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…

Continue Reading
More Articles
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Sponsorship Shoutout: Hartigan’s Heroes and Romeoville Toyota

Annie, the captain of Hartigan’s Heroes, heard about Toyota Cares from a neighbor. She reached out to her local Toyota…

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DIY Fundraising : MavMan Sidekicks

We love to highlight rock star fundraising teams and MavMan Sidekicks did something extraordinary in just 7 days! Kara, Maverick’s…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Reproductive Options in NF1, NF2, and Schwannomatosis (Revised Article)

People who themselves have been diagnosed with NF1, NF2 and Schwannomatosis, or who have a child with one of these…

New Study – Improving Peer Relationships in Teens with NF1

Are you interested in participating in a new study to examine the effectiveness of a  telehealth group for improving peer…

NF1 and Velopharyngeal Insufficiency

Velopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…

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