Celebrating 35 Years

2017 Symposium and iNFo Fair Saturday, Nov. 11th

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NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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A Special Letter from an NF Mom

From Jenn, mom of Audrey, a 5-year-old with NF1 I think your daughter might have a condition called neurofibromatosis. Don’t…

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Dedicated Family

Erin and Jonathan are big on raising awareness for neurofibromatosis and being advocates for NF Midwest. The two have a…

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More Articles
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Medical Imaging for NF1: Radiation Exposure

We have a new be iNFormed article for our NF Midwest community. be iNFormed articles are written on various subjects of interest…

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Neurofibromatosis and Other Research Threatened

There is an urgent and devastating threat to neurofibromatosis research, and we urge you, your friends, family and everyone you…

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NF Midwest Collaborates to Fund University of Minnesota Research

NF Midwest and NF Upper Midwest are excited to announce their collaboration in awarding funds to the Minnesota Investigators in…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

A Special Letter from an NF Mom

From Jenn, mom of Audrey, a 5-year-old with NF1 I think your daughter might have a condition called neurofibromatosis. Don’t…

Dedicated Family

Erin and Jonathan are big on raising awareness for neurofibromatosis and being advocates for NF Midwest. The two have a…

resiliency

Building Resilience in Midlife

Living with a chronic illness can be extremely difficult. NF is no exception. The article linked in this blog post…

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