Celebrating 41 Years

2023 Walk4NF

Madison, WI May 13 | Indianapolis, IN May 20

Naperville, IL June 3 | Columbia, MO June 24

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NO ONE FIGHTS ALONE!

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

iNFo Fair 2023 October 21

We are back together in Naperville, IL to share and learn!

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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A Heartfelt Thank You to Madison and Indianapolis

Dear Walk4NF Participants, Supporters, and Volunteers, Our first two walks are done! It is with immense gratitude and joy in…

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2023 Scholarship Recipients

For many years NF Midwest has provided the opportunity for students from our area diagnosed with NF1, NF2-SWN, or schwannomatosis…

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2023 Birdies for Charity / NF Midwest Fundraising Campaign John Deere Classic Pro Golf Tournament July 5-9

We are excited to announce that once again NF Midwest is a participating charity in the John Deere Classic Birdies…

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Join Us in This Year’s Walk4NF Events

Join us in supporting neurofibromatosis (NF) by participating in one of our Walk4NF events or by volunteering your time and…

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Registration is now open for Camp New Friends July 16- July 22, 2023

Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

A Heartfelt Thank You to Madison and Indianapolis

Dear Walk4NF Participants, Supporters, and Volunteers, Our first two walks are done! It is with immense gratitude and joy in…

2023 Scholarship Recipients

For many years NF Midwest has provided the opportunity for students from our area diagnosed with NF1, NF2-SWN, or schwannomatosis…

Spring 2023 NF Midwest Newsletter

Check out our Spring 2023 NF Midwest Newsletter! The highlights of this issue include… Page 1 Page 2 Page 3…

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