Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 4th          • Madison, WI – May 18th;
• Naperville, IL – June 1st            • Fort Wayne, IN – Sept 21st

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Request NF Research Support For 2020

Protect federal funds for neurofibromatosis by acting now! Fill out the form below to Raise your Voice for NF Research….

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October 2018 Slides and Transcript – Resiliency

At our October 20th, 2018 symposium we had the pleasure of learning strategies and skills to improve resiliency and over…

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October 2018 Symposium Transcript – Neuromuscular Retraining for Facial Paralysis

At the October 2018 NF Midwest Symposium and iNFo Fair Jackie Diels, OT,  a leading authority on facial neuromuscular retraining (NMR)…

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Janna – A Face of NF

Our daughter Janna was diagnosed with neurofibromatosis type 1 when she was five months old. Doctors tell us that it…

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Young Adult Leadership Program

Because the neurofibromatosis cause needs New Fighters and young iNFluencers! See photos This January I had the extreme privilege of…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Request NF Research Support For 2020

Protect federal funds for neurofibromatosis by acting now! Fill out the form below to Raise your Voice for NF Research….

October 2018 Slides and Transcript – Resiliency

At our October 20th, 2018 symposium we had the pleasure of learning strategies and skills to improve resiliency and over…

October 2018 Symposium Transcript – Neuromuscular Retraining for Facial Paralysis

At the October 2018 NF Midwest Symposium and iNFo Fair Jackie Diels, OT,  a leading authority on facial neuromuscular retraining (NMR)…

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