Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 4th          • Madison, WI – May 18th;
• Naperville, IL – June 1st            • Fort Wayne, IN – Sept 21st

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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New Study Results on Pain and Patients with Neurofibromatosis Type 1

Frank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…

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Sign Up for a Resiliency Study on NF

Massachusetts General Hospital is looking for adults with NF1, NF2, or Schwannomatosis to participate in a research study to enhance…

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New Website Connects NF Patients with Doctors

NF Collective Launches New Website to Connect NF Patients with Doctors The NF Collective, a group of organizations dedicated to…

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Spring 2019 Neurofibromatosis Midwest Newsletter

Check out our Spring 2019 NF Midwest Newsletter! The highlights of this issue include… Page 1 Information on the new…

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New Care Guidelines for Children with NF1

The American Academy of Pediatrics has published an updated clinical guideline on the Health Supervision for Children With Neurofibromatosis Type…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

photo of Kevin Peng for Neurofibromatosis Midwest symposium

iNFo Fair 2019: Auditory Brainstem and Cochlear Implantation

For many newly diagnosed NF2 patients the first question that usually comes to mind is “Am I going to lose…

New Study Results on Pain and Patients with Neurofibromatosis Type 1

Frank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…

Sign Up for a Resiliency Study on NF

Massachusetts General Hospital is looking for adults with NF1, NF2, or Schwannomatosis to participate in a research study to enhance…

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis


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