Celebrating 35 Years

Don't Miss Our Annual Symposim and iNFo Fair! October 20th in Hoffman Estates, IL

Save the date and look for registration to be open soon!

Great Steps WALK4NF Get registered now!

We have one more 2018 Walk4NF in  Fort Wayne, IN on September 15th

REGISTER

The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Sam – A Face of NF

Sam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…

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2018 Scholarship Recipients

Neurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth…

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Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

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More Articles
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Stacey and Matt – Faces of NF

We inherited NF1 from our mom, Shirley, who passed away from breast cancer at the age of 53. She fought…

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Spring 2018 Neurofibromatosis Midwest Newsletter

Check out our Spring 2018 NF Midwest Newsletter! The highlights of this issue include… Research grants are given to the…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Sam – A Face of NF

Sam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…

neurofibromatosis, neurofibromas, scholarship

2018 Scholarship Recipients

Neurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth…

neurofibromatosis, nf, nf1, nf2, neurofibromas

Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

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