Celebrating 41 Years

2023 Walk4NF

Madison, WI May 13 | Indianapolis, IN May 20

Naperville, IL June 3 | Columbia, MO June 24

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

iNFo Fair 2023 October 21

We are back together in Naperville, IL to share and learn!

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Participants Wanted for cNF Natural History Study

Cutaneous neurofibromas also known as cNF are common among those with neurofibromatosis Type 1 (NF1). These begin tumor skin tumors…

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Do it Your Way Fundraising: Doesn’t Have to be Difficult or Time Consuming.

Fundraising is an essential part of keeping organizations operating to continue their mission of research, support, and advocacy. Events such…

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Spotlight on Hosting a DIY Event: E’s Hulksters

The captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event…

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Join Us in This Year’s Walk4NF Events

Join us in supporting neurofibromatosis (NF) by participating in one of our Walk4NF events or by volunteering your time and…

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Registration is now open for Camp New Friends July 16- July 22, 2023

Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Monthly Giving: Small Gift, Big Impact

A budget friendly way to plan your giving throughout the year. Monthly giving, also known as recurring giving, is a…

Participants Wanted for cNF Natural History Study

Cutaneous neurofibromas also known as cNF are common among those with neurofibromatosis Type 1 (NF1). These begin tumor skin tumors…

Do it Your Way Fundraising: Doesn’t Have to be Difficult or Time Consuming.

Fundraising is an essential part of keeping organizations operating to continue their mission of research, support, and advocacy. Events such…

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