Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

Tentative Dates

• Naperville, IL October 3rd                •Fort Wayne, IN October 17th
• Madison, WI September 12th         • Columbia, MO October 24th

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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New Survey for Adults Neurofibromatosis or Schwannomatosis

Researchers are looking for adults with neurofibromatosis type 1, neurofibromatosis type 2, or schwannomatosis to participate in an anonymous online…

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Camp New Friends (NF) 2020 Will Be Virtual – UPDATE (6/23/20) with Registration cut-off

UPDATE:  PLEASE BE ADVISED OUR CUT-OFF FOR REGISTRATIONS IS JULY 6!!!!  This date is the last date for registration information…

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Birdies for Charity 2020-UPDATE

UPDATE: On Thursday May 28th it was announced that due to the continued COVID-19 restrictions the 2020 John Deere Classic…

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2021 Young Adult Leadership Program

Are you a young adult living with NF and want to make a difference in your community? In addition to…

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DIY Fundraising : MavMan Sidekicks

We love to highlight rock star fundraising teams and MavMan Sidekicks did something extraordinary in just 7 days! Kara, Maverick’s…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

New Survey for Adults Neurofibromatosis or Schwannomatosis

Researchers are looking for adults with neurofibromatosis type 1, neurofibromatosis type 2, or schwannomatosis to participate in an anonymous online…

Camp New Friends (NF) 2020 Will Be Virtual – UPDATE (6/23/20) with Registration cut-off

UPDATE:  PLEASE BE ADVISED OUR CUT-OFF FOR REGISTRATIONS IS JULY 6!!!!  This date is the last date for registration information…

Birdies for Charity 2020-UPDATE

UPDATE: On Thursday May 28th it was announced that due to the continued COVID-19 restrictions the 2020 John Deere Classic…

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