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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Spring 2017 Neurofibromatosis Midwest Newsletter

Check out our Spring 2017 NF Midwest Newsletter! The highlights of this issue include… An announcement of research grants given…

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2017 Scholarship Applications Now Being Taken

Are you a student with NF who will be taking college courses in the fall of 2017? This could be…

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Five recommendations for people with NF2

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on March 27, 2017. Additions and translation…

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What to do if your personal physician doesn’t know a lot about NF?

We recently invited Dr. Jason Marker, a primary care physician, to share his thoughts on “what to do if your…

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Selumetinib Research Question

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on January 13, 2017. Additions and translation…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Newsletter

Spring 2017 Neurofibromatosis Midwest Newsletter

Check out our Spring 2017 NF Midwest Newsletter! The highlights of this issue include… An announcement of research grants given…

collage

2017 Scholarship Applications Now Being Taken

Are you a student with NF who will be taking college courses in the fall of 2017? This could be…

Calma-NF2-01

Five recommendations for people with NF2

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on March 27, 2017. Additions and translation…

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