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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Watch Libby on The Doctors!

NF Midwest member, Libby, did an amazing job in her third appearance on The Doctors television show and her reveal…

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More Articles
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Libby Returns to the Doctors

NF Midwest community member, Libby Huffer, will appear for the third time on The Doctors on Monday, January 15th. Check your local…

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More Articles
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2018 Scholarship Applications Now Being Taken

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…

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More Articles
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We Need Your Personal Letters for Congress

On February 12th and 13th, NF Midwest staff and volunteers will descend on Washington DC along with other NF organizations…

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NF1 – A Deeper Overview

Just in case you missed our NF Midwest Symposium and iNFo Fair in November (even if you didn’t and just…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Watch Libby on The Doctors!

NF Midwest member, Libby, did an amazing job in her third appearance on The Doctors television show and her reveal…

Libby Returns to the Doctors

NF Midwest community member, Libby Huffer, will appear for the third time on The Doctors on Monday, January 15th. Check your local…

2018 Scholarship Applications Now Being Taken

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…

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