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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Camp New Friends (NF) 2022 IS IN PERSON, AGAIN!!!!!

Hello everyone! We hope you are doing well.  Our friends at Brainy Camps are working hard to ensure Camp New…

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2022 Scholarship Applications Now Being Accepted

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…

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What is DIY Fundraising?

DIY Fundraising Events are a great way to raise funds and awareness all while having fun! DIY Events can be…

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2022 Walk4NF Shirt Colors

Big news! Jay has chosen a shirt color of red with blue ink for NF Midwest’s 2022 Walk4NF season. These…

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NF Study of Genetic Mutations

Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Camp New Friends (NF) 2022 IS IN PERSON, AGAIN!!!!!

Hello everyone! We hope you are doing well.  Our friends at Brainy Camps are working hard to ensure Camp New…

2022 Scholarship Applications Now Being Accepted

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…

What is DIY Fundraising?

DIY Fundraising Events are a great way to raise funds and awareness all while having fun! DIY Events can be…

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