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The Faces of Neurofibromatosis

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Virtual iNFo Fair 2021

NF Midwest, NF Northeast, Texas NF, and The Littlest Tumor Foundation have collaborated to present a virtual day of learning…

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Simposio Médico 2021 Acerca la Neurofibromatosis Tipo 1

El Hospital de Niños de Los Ángeles está llevando a cabo un seminario web de educación virtual sobre neurofibromatosis tipo…

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2022 Walk4NF Shirt Colors

Big news! Jay has chosen a shirt color of red with blue ink for NF Midwest’s 2022 Walk4NF season. These…

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Summer 2021 NF Midwest Newsletter

Check out our Summer 2021 NF Midwest Newsletter! The highlights of this issue include… Page 1 It’s been a tough…

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NF Study of Genetic Mutations

Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Virtual iNFo Fair 2021

NF Midwest, NF Northeast, Texas NF, and The Littlest Tumor Foundation have collaborated to present a virtual day of learning…

Simposio Médico 2021 Acerca la Neurofibromatosis Tipo 1

El Hospital de Niños de Los Ángeles está llevando a cabo un seminario web de educación virtual sobre neurofibromatosis tipo…

2022 Walk4NF Shirt Colors

Big news! Jay has chosen a shirt color of red with blue ink for NF Midwest’s 2022 Walk4NF season. These…

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