Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Naperville, IL June 6th                        •Fort Wayne, IN October 17th
• Madison, WI September 12th         • Columbia, MO October 24th

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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COVID19 Stimulus Packet Rebates FAQs

Below are answers to many of the frequently asked questions regarding the COVID stimulus packet. We hope this helps our…

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Simple Update and Positive Message

Like the rest of the world, the staff and board of NF Midwest has been busy understanding and planning for what may…

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be iNFormed about MPNSTs in NF Type 1

NF Midwest has had a very important article written about Malignant Peripheral Nerve Sheath Tumors (or MPNSTs) in Neurofibromatosis Type…

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Gastrointestinal Tumors in NF Type 1

Dr. James Tonsgard, MD, of the University of Chicago, graciously contributed this article.  The article is an overview of Gastrointestinal…

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NF Midwest Collaborates to Fund NF2 Gene Therapy Research

NF Midwest, NF Northeast and NF2 BioSolutions have joined forces to fund an NF2 Gene Therapy Research Study at the…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

COVID19 Stimulus Packet Rebates FAQs

Below are answers to many of the frequently asked questions regarding the COVID stimulus packet. We hope this helps our…

Simple Update and Positive Message

Like the rest of the world, the staff and board of NF Midwest has been busy understanding and planning for what may…

be iNFormed about MPNSTs in NF Type 1

NF Midwest has had a very important article written about Malignant Peripheral Nerve Sheath Tumors (or MPNSTs) in Neurofibromatosis Type…

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