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The Faces of Neurofibromatosis

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Great Steps WALK4NF Get registered now!

2019 registration is open for Madison (May 18th) and Naperville (June 1st).

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NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Jay – A Face of NF

Jay, 10 Mos. Our sweet baby boy Jay was diagnosed with NF Type 1 in May of 2018 at six…

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Another $15 Million for NF Research

This past February, NF Midwest brought volunteers to Washington DC to once again advocate for federal dollars for neurofibromatosis type…

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2018 Scholarship Recipients

Neurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth…

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Free Packet of iNFo

If you’re in the NF Midwest service area of Illinois, Indiana, Iowa, Kentucky, Missouri (east half), or Wisconsin and are…

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New Guidelines for the Care of Adults with NF1

Great news! A new, detailed clinical practice guideline has been made available on the care of adults with neurofibromatosis type…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Jay – A Face of NF

Jay, 10 Mos. Our sweet baby boy Jay was diagnosed with NF Type 1 in May of 2018 at six…

Another $15 Million for NF Research

This past February, NF Midwest brought volunteers to Washington DC to once again advocate for federal dollars for neurofibromatosis type…

iNFo Fair 2018: Three NF Type 2 Presentations

NF Midwest’s October 20th NF Symposium and iNFo Fair has three topics specifically related to Neurofibromatosis Type 2. The morning…

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