Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 4th          • Madison, WI – May 18th;
• Naperville, IL – June 1st            • Fort Wayne, IN – Sept 21st

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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New Website Connects NF Patients with Doctors

NF Collective Launches New Website to Connect NF Patients with Doctors The NF Collective, a group of organizations dedicated to…

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Spring 2019 Neurofibromatosis Midwest Newsletter

Check out our Spring 2019 NF Midwest Newsletter! The highlights of this issue include… Page 1 Information on the new…

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New Care Guidelines for Children with NF1

The American Academy of Pediatrics has published an updated clinical guideline on the Health Supervision for Children With Neurofibromatosis Type…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

New Website Connects NF Patients with Doctors

NF Collective Launches New Website to Connect NF Patients with Doctors The NF Collective, a group of organizations dedicated to…

Evita – A Face of NF

My name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…

Shad – A Face of NF

I joined the Army at 19 years old. I did all the training and arrived at my duty station. In…

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