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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Cash’s Crew Raises Awareness!

Erin Carter, whose 4 year old son, Cash, was diagnosed with NF in 2015, is determined to raise awareness and…

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Parents of 3 to 18 Year Olds with NF1 Needed!

Are you the parent/caregiver of a child with neurofibromatosis type 1 (NF1) between the ages of 3-18 years?  The MIND…

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$15 Million for NF Research Thanks to Grassroots Efforts and the NF Midwest Community

The efforts of our community, our donors, and the advocacy of NF Midwest (and other NF organizations) all worked together…

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Brainstem Tumors in NF1

NF Midwest is excited to add a new piece about Brainstem Tumors in NF1 to our be iNFormed series. This is…

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NF Midwest Funds NF2 Grant to MGH Researcher

NF Midwest, in collaboration with NF Northeast, has awarded Dr. Vijaya Ramesh from Massachusetts General Hospital, a grant for research in neurofibromatosis…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Cash’s Crew Raises Awareness!

Erin Carter, whose 4 year old son, Cash, was diagnosed with NF in 2015, is determined to raise awareness and…

Parents of 3 to 18 Year Olds with NF1 Needed!

Are you the parent/caregiver of a child with neurofibromatosis type 1 (NF1) between the ages of 3-18 years?  The MIND…

$15 Million for NF Research Thanks to Grassroots Efforts and the NF Midwest Community

The efforts of our community, our donors, and the advocacy of NF Midwest (and other NF organizations) all worked together…

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