Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

Tentative Dates

• Naperville, IL October 3rd                •Fort Wayne, IN October 17th
• Madison, WI September 12th         • Columbia, MO October 24th

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The Faces of Neurofibromatosis

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NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Camp New Friends (NF) 2020 Will Be Virtual

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Birdies for Charity 2020

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2021 Young Adult Leadership Program

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DIY Fundraising : MavMan Sidekicks

We love to highlight rock star fundraising teams and MavMan Sidekicks did something extraordinary in just 7 days! Kara, Maverick’s…

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FAQs for New KOSELUGO (Selumentinib) NF1 Drug

KOSELUGO FAQS In April 2020 the U.S. Food and Drug Administration (FDA) approved KOSELUGOTM (selumetinib) for use in children over…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Camp New Friends (NF) 2020 Will Be Virtual

Hello everyone! We hope you are doing well in your home environments as we are complying with the various stay…

Birdies for Charity 2020

We are so excited that Steve and Diane Reason reached out about including NF Midwest in this year’s Birdies for…

2021 Young Adult Leadership Program

Are you a young adult living with NF and want to make a difference in your community? In addition to…

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