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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Fort Wayne Meeting

Our NF Midwest Fort Wayne group had a great meeting on Thursday, January 26th! They prepared for this years Great…

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2017 Scholarship Applications Now Being Taken

Are you a student with NF who will be taking college courses in the fall of 2017? This could be…

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NF Midwest Awarded $20,000 Grant for Care

NF Midwest is very excited to have received a $20,000 grant from the Driven to Care Philanthropy Program. Driven to…

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Using Mindfulness for Pain in Neurofibromatosis (ACT Study for Pain)

Life can feel a bit like a juggling act some days. Too often, we find ourselves trying so hard to…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Fort Wayne meeting 1.26.2017

Fort Wayne Meeting

Our NF Midwest Fort Wayne group had a great meeting on Thursday, January 26th! They prepared for this years Great…

collage

2017 Scholarship Applications Now Being Taken

Are you a student with NF who will be taking college courses in the fall of 2017? This could be…

capitol photo

We Need Your 2017 Personal Stories for Congress

On February 6th and 7th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…

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