Celebrating 41 Years

2023 Walk4NF

Madison May 13 | Naperville June 3

Columbia June 24 | Indianapolis TBD

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The Faces of Neurofibromatosis

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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We Need Your Personal Letters for Congress

February 6th and 7th, NF Midwest staff and volunteers will be meeting with  our the offices of our Senators and…

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Registration is now open for Camp New Friends July16- July 22, 2023

Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…

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Natural History Study of Cutaneous Neurofibromas in People with NF1

John Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…

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2023 Scholarship Applications now being Accepted.

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…

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What to Do if You Have an Insurance Issue

Insurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

advocacy lobbying neurofibromatosis

We Need Your Personal Letters for Congress

February 6th and 7th, NF Midwest staff and volunteers will be meeting with  our the offices of our Senators and…

Registration is now open for Camp New Friends July16- July 22, 2023

Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…

Natural History Study of Cutaneous Neurofibromas in People with NF1

John Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…

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