Celebrating 41 Years

iNFo Fair 2023 October 21

We are back together in Naperville, IL to share and learn!

2023 Walk4NF

Virtual Walk4NF until Sept. 30th

Madison, WI May 13 | Indianapolis, IN May 20 | Naperville, IL June 3 | Columbia, MO June 24

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NO ONE FIGHTS ALONE!

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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2023 NF Midwest’s Young Adult Leadership Program

The NF Midwest Young Adult Leadership Program is a transformative experience for individuals passionate about creating change. This program equips…

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NF Midwest: Supporting Research in Neurofibromatosis

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Join Us for an Exciting Return: NF Midwest iNfo Fair In-Person on October 21st!

NF Midwest iNFo Fair is making a triumphant return to in-person this year. Mark your calendars for October 21st as…

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Cycle 25, 50, 62, or 100 Miles for NF – North Shore Century Ride

Imagine the sun in your face and breathing in the fresh air all as you peddle with a purpose. NF…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

2023 NF Midwest’s Young Adult Leadership Program

The NF Midwest Young Adult Leadership Program is a transformative experience for individuals passionate about creating change. This program equips…

August 30th is National Grief Awareness Day

August 30th is National Grief Awareness Day. National Grief Awareness Day was founded by Angie Cartwright in 2014 to normalize…

NF Midwest: Supporting Research in Neurofibromatosis

NF Midwest’s support for research of neurofibromatosis (NF) is crucial for advancing our understanding of the condition and developing better…

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