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2021 Great Steps Walks 4NF Information

2021 Great Steps Walk 4NF Information coming soon!

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The Faces of Neurofibromatosis

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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NF Power Hours

The Covid-19 pandemic has clearly had a tremendous impact on us all. Perhaps the most affected area, aside from medical…

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Transitioning to Adulthood

NF Midwest is proud to announce an upcoming webinar and resource produced by The NF Collective about transitioning to adult…

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NF Midwest Provides Funds to Help NF Patients

NF Midwest recently provided funds to three NF providers through our Care Impact Grant Program. The NF Care Impact Grant…

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A Look Back at our 2020 Scholarship Winners – 2021 Applications Now Open

In 2020, NF Midwest awarded $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the seventh…

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NF Midwest Co-Funds New NF2 Gene Therapy Project

Thanks to the support of our donors, NF Midwest is proud to be one of four NF organizations collaborating to…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

NF Power Hours

The Covid-19 pandemic has clearly had a tremendous impact on us all. Perhaps the most affected area, aside from medical…

Transitioning to Adulthood

NF Midwest is proud to announce an upcoming webinar and resource produced by The NF Collective about transitioning to adult…

NF Research Program Looking for Consumer Reviewers

The DOD NF Research Program (NFRP) is looking for consumer reviewers. The Department of Defense, Neurofibromatosis Research Program Overview The…

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