Celebrating 35 Years

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The Faces of Neurofibromatosis

See them, hear them, care about them!

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Great Steps WALK4NF Get registered now!

2019 registration is open for Madison (May 18th) and Naperville (June 1st).

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NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…

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10 Ways You Can Help Your Favorite Nonprofits!

Which nonprofits have you wanted to help this year? You probably have a list of your favorites! Supporting those meaningful…

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NF Midwest Supports Area Clinical Trials

If you’ve been paying any attention to NF research in the last several years you’ll have noticed that in clinical…

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Jay – A Face of NF

Jay, 10 Mos. Our sweet baby boy Jay was diagnosed with NF Type 1 in May of 2018 at six…

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Free Packet of iNFo

If you’re in the NF Midwest service area of Illinois, Indiana, Iowa, Kentucky, Missouri (east half), or Wisconsin and are…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

advocacy lobbying neurofibromatosis

We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…

Fundraise for NF

10 Ways You Can Help Your Favorite Nonprofits!

Which nonprofits have you wanted to help this year? You probably have a list of your favorites! Supporting those meaningful…

NF Midwest Supports Area Clinical Trials

If you’ve been paying any attention to NF research in the last several years you’ll have noticed that in clinical…

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