42 Years of Care and Ensuring No One Fights Alone!

2024 Walk4NF

Stroll, Celebrate, Connect

Columbia, MO April 20 | Madison, WI May 11

Indianapolis, IN May 18 | Naperville, IL June 8

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NO ONE FIGHTS ALONE!

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Legends of the Cause: Gordon and Gert

Legends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…

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Thank You to Our DC Advocates

Thank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,…

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Opportunity For Those Wanting to Continue Their Education: Scholarship Applications Are Open!

Here is your sign to start the new year working on your goal of continuing post high school education. The…

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New Support Groups Re-Launching in February

NF Midwest recognizes the unique challenges that accompany living with neurofibromatosis (NF), impacting both individuals with the condition and their…

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Unleash Your Impact: DIY Fundraising Spotlight

NF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Legends of the Cause: Gordon and Gert

Legends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…

Coffee-Colored Spots: Café au Lait and Understanding NF

Have you ever noticed faint, light brown patches on your skin? These “café au lait” spots are quite common, but…

Thank You to Our DC Advocates

Thank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,…

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