Celebrating 35 Years

2022 Walk4NF

One more in 2022 in Indianapolis, September 3rd

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The Faces of Neurofibromatosis

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Resilient Youth With NF Study

Researchers at Massachusetts General Hospital are investigating a new stress and symptom management program for adolescents (ages 12-17) with NF1,…

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2022 Scholarship Recipients

NF Midwest has awarded the 2022 scholarship recipients! Find out who’s been granted a scholarship plus the changes we’ve made…

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What is DIY Fundraising?

DIY Fundraising Events are a great way to raise funds and awareness all while having fun! DIY Events can be…

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2022 Walk4NF Shirt Colors

Big news! Jay has chosen a shirt color of red with blue ink for NF Midwest’s 2022 Walk4NF season. These…

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NF Study of Genetic Mutations

Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Resilient Youth With NF Study

Researchers at Massachusetts General Hospital are investigating a new stress and symptom management program for adolescents (ages 12-17) with NF1,…

2022 Scholarship Recipients

NF Midwest has awarded the 2022 scholarship recipients! Find out who’s been granted a scholarship plus the changes we’ve made…

Camp New Friends (NF) 2022 IS IN PERSON, AGAIN!!!!!

Hello everyone! We hope you are doing well.  Our friends at Brainy Camps are working hard to ensure Camp New…

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