Celebrating 35 Years

2022 Walk4NF

One more in 2022 in Indianapolis, September 3rd

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The Faces of Neurofibromatosis

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Teens with NF1 Needed

We have a research participation opportunity for families of children with NF1 ages 12 through 17. Do you have a…

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Resilient Youth With NF Study

Researchers at Massachusetts General Hospital are investigating a new stress and symptom management program for adolescents (ages 12-17) with NF1,…

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2022 Scholarship Recipients

NF Midwest has awarded the 2022 scholarship recipients! Find out who’s been granted a scholarship plus the changes we’ve made…

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Walk4NF Columbia 2022

What a wonderful morning in Columbia, Missouri! On May 7th, a sunny spring Saturday, we gathered for the 3rd Walk4NF…

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What is DIY Fundraising?

DIY Fundraising Events are a great way to raise funds and awareness all while having fun! DIY Events can be…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Teens with NF1 Needed

We have a research participation opportunity for families of children with NF1 ages 12 through 17. Do you have a…

Resilient Youth With NF Study

Researchers at Massachusetts General Hospital are investigating a new stress and symptom management program for adolescents (ages 12-17) with NF1,…

2022 Scholarship Recipients

NF Midwest has awarded the 2022 scholarship recipients! Find out who’s been granted a scholarship plus the changes we’ve made…

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