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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Autism Spectrum Disorder in NF1

NF Midwest is excited to add another new piece to our be iNFormed series. This is a series of material…

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NF Adult Game Night in Chicago

Adults with NF, get out and meet others!  Join us for a fun night of pizza, appetizers and games at…

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Camp New Friends 2018

If you have a child with neurofibromatosis, consider sending them to Camp New Friends. Now is the time to sign…

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Funding Through the CDMRP By State

Every year NF Midwest staff and volunteers travel to Washington, DC to advocate for research dollars for neurofibromatosis and schwannomatosis through the…

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NF1 Study Looking for Children Ages 4 to 6

Attention, parents of children (ages 4-6) with neurofibromatosis Type 1, help researchers learn more about your child’s attention abilities! Purpose…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Autism Spectrum Disorder in NF1

NF Midwest is excited to add another new piece to our be iNFormed series. This is a series of material…

NF Adult Game Night in Chicago

Adults with NF, get out and meet others!  Join us for a fun night of pizza, appetizers and games at…

Camp New Friends 2018

If you have a child with neurofibromatosis, consider sending them to Camp New Friends. Now is the time to sign…

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