Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 4th          • Madison, WI – May 18th;
• Naperville, IL – June 1st            • Fort Wayne, IN – Sept 21st

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The Faces of Neurofibromatosis

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Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…

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Meet Sera, NF Midwest Area Clinical Trial Participant

Sera has a tumor that runs the length of her arm, all the way from her hand up to her…

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$7 Million at 7 AM on Giving Tuesday

Giving Tuesday is December 3rd and we invite you to join us in coming together with your family, friends, co-workers,…

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New Articles on the Removal of Cutaneous Neurofibromas

At NF Midwest’s Symposium and iNFo Fair last Saturday, November 9th, we were very fortunate to have Dr. Lu Le…

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Study: Looking for Caregivers of Children with NF1

Caregivers of children with NF1: Please, help us continue to make strides by participating in research! With funding from NF…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

advocacy lobbying neurofibromatosis

We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…

Meet Sera, NF Midwest Area Clinical Trial Participant

Sera has a tumor that runs the length of her arm, all the way from her hand up to her…

$7 Million at 7 AM on Giving Tuesday

Giving Tuesday is December 3rd and we invite you to join us in coming together with your family, friends, co-workers,…

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