Celebrating 35 Years

NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Wear the Word!

Join Rory in raising awareness and help the world recognize the neurofibromatosis cause by WEARING THE WORD! She’s the one…

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NF Family Wellness Retreat in Wisconsin

The Littlest Tumor Foundation is hosting a NF Family Wellness Retreat on August 11-14, 2017 in Clintonville, WI. According to…

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Cafe Au Lait Spots and Diagnosis of NF1

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on May 7, 2017. Additions and…

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A Simple, Life-Saving Action for NF1

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on September 15, 2015. Additions and translation…

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NF Midwest Collaborates to Fund University of Minnesota Research

NF Midwest and NF Upper Midwest are excited to announce their collaboration in awarding funds to the Minnesota Investigators in…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Hoo-rag1

Wear the Word!

Join Rory in raising awareness and help the world recognize the neurofibromatosis cause by WEARING THE WORD! She’s the one…

littlest-tumor

NF Family Wellness Retreat in Wisconsin

The Littlest Tumor Foundation is hosting a NF Family Wellness Retreat on August 11-14, 2017 in Clintonville, WI. According to…

birdies_for_charity

Win A Lease on a Lexus and Help Neurofibromatosis!

Here’s an event you can participate in from your couch and possibly win a two year lease on a 2017…

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