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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Spring 2016 Neurofibromatosis Midwest Newsletter

This newsletter published in May 2016 features our new logo and a slightly new newsletter design. The highlighs of this issue include……

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New NF Navigator/Social Worker: Dedicated to Care!

NF Midwest is truly focusing on CARE and is thrilled to have hired Jasmine Mitchell, a social worker, to support…

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New Codes for Removing a High Quantity of Neurofibromas

Leading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes approved. For two years NF Midwest has…

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Win A Lease on a Lexus and Help Neurofibromatosis!

Here’s an event you can participate in from your couch and possibly win a two year lease on a 2016…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

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Senate Bill Threatens NF Research

SENATE BILL THREATENS NEUROFIBROMATOSIS AND OTHER RESEARCH! Update: Thanks to the grassroots efforts of NF supporters and those for research on…

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Family Matching Your Donation Up to $10,000!

In honor of NF Awareness Month, Sera Leavy and Family have generously pledged up to $10,000 in a dollar for dollar…

newsletter 2016

Spring 2016 Neurofibromatosis Midwest Newsletter

This newsletter published in May 2016 features our new logo and a slightly new newsletter design. The highlighs of this issue include……

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