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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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NF1 – A Deeper Overview

Just in case you missed our NF Midwest Symposium and iNFo Fair in November (even if you didn’t and just…

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More Articles
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NF Midwest’s Outreach and Care Program & Coordinator

NF Midwest is very excited to talk about our new(ish) Outreach and Care Program. This is a program that we’ve…

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More Articles
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National Pain Society Award Given to NF Pain Researcher

Frank Buono, PhD, one of our NF Midwest community members and recent speaker at NF Midwest’s November symposium, has been…

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More Articles
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Health Supervision for Children with Neurofibromatosis

Here’s an article from 2008 from the  American Academy of Pediatrics that includes guidelines for the health supervision of children with…

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NF Midwest Symposium & iNFo Fair Highlights Part 2

NF Midwest’s 27th Symposium & iNFo Fair held November 11 had so much information that there’s no way to share it…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

NF1 – A Deeper Overview

Just in case you missed our NF Midwest Symposium and iNFo Fair in November (even if you didn’t and just…

NF Midwest’s Outreach and Care Program & Coordinator

NF Midwest is very excited to talk about our new(ish) Outreach and Care Program. This is a program that we’ve…

National Pain Society Award Given to NF Pain Researcher

Frank Buono, PhD, one of our NF Midwest community members and recent speaker at NF Midwest’s November symposium, has been…

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