Celebrating 35 Years
neurofibromatosis walk

The Walk That Wasn't Coming Together While Staying Apart

Join us in raising FUNds and Awareness in the time leading up to October 17th when with will have an online community CELEBRATHON!

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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New Study – Improving Peer Relationships in Teens with NF1

Are you interested in participating in a new study to examine the effectiveness of a  telehealth group for improving peer…

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NF1 and Velopharyngeal Insufficiency

Velopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…

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Sponsorship Shoutout: Hartigan’s Heroes and Romeoville Toyota

Annie, the captain of Hartigan’s Heroes, heard about Toyota Cares from a neighbor. She reached out to her local Toyota…

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Summer 2020 Neurofibromatosis Midwest Newsletter

Check out our Summer 2020 NF Midwest Newsletter! SUMMER 2020 NEWSLETTER PDF The highlights of this issue include… Page 1…

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Volunteer Spotlight : Tim E

Meet Tim and Sue! Tim is one of our amazing, out of this world, extraordinary volunteers who heads up the…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

New Study – Improving Peer Relationships in Teens with NF1

Are you interested in participating in a new study to examine the effectiveness of a  telehealth group for improving peer…

NF1 and Velopharyngeal Insufficiency

Velopharyngeal insufficiency (VPI) is a resonance disorder that occurs during speech that results from the inability of the vellum (or…

Sponsorship Shoutout: Hartigan’s Heroes and Romeoville Toyota

Annie, the captain of Hartigan’s Heroes, heard about Toyota Cares from a neighbor. She reached out to her local Toyota…

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