Celebrating 35 Years

2017 Symposium and iNFo Fair Saturday, Nov. 11th

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Building Resilience in Midlife

Living with a chronic illness can be extremely difficult. NF is no exception. The article linked in this blog post…

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Medical Imaging for NF1: Radiation Exposure

We have a new be iNFormed article for our NF Midwest community. be iNFormed articles are written on various subjects of interest…

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Spinal Neurofibromas in NF1

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on July 3 2017. Additions and…

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Couple Donates $5,000 to NF Midwest

Donations large and small are vital to our ability to continue to provide programs and services to members of the…

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NF Midwest Collaborates to Fund University of Minnesota Research

NF Midwest and NF Upper Midwest are excited to announce their collaboration in awarding funds to the Minnesota Investigators in…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

resiliency

Building Resilience in Midlife

Living with a chronic illness can be extremely difficult. NF is no exception. The article linked in this blog post…

Medical Imaging for NF1: Radiation Exposure

We have a new be iNFormed article for our NF Midwest community. be iNFormed articles are written on various subjects of interest…

Neurofibromatosis and Other Research Threatened

There is an urgent and devastating threat to neurofibromatosis research, and we urge you, your friends, family and everyone you…

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