Celebrating 35 Years

The Faces of Neurofibromatosis

See them, hear them, care about them!

Donate

Sign-up for Outreach & Support

We’re here and we care!

Sign-up

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

Donate Now

Great Steps 4NF Sign-up now!

It’s never too early to get started! Build a team, raise funds, win stuff and enjoy the fun!

REGISTER

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


https://www.nfmidwest.org/wp-content/uploads/2012/07/participate-in-research-posts-background-01-400x240.jpg

NF1 Study Looking for Children Ages 4 to 6

Attention, parents of children (ages 4-6) with neurofibromatosis Type 1, help researchers learn more about your child’s attention abilities! Purpose…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2012/07/participate-in-research-posts-background-01-400x240.jpg

Resiliency for NF Study – Looking for Participants

Are you feeling stressed? Are your NF symptoms bothersome? The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2018/01/libby-at-the-Doctors2-400x240.jpg

Watch Libby on The Doctors!

NF Midwest member, Libby, did an amazing job in her third appearance on The Doctors television show and her reveal…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2017/10/2017-Scholarship-Recipients-400x240.jpg

2018 Scholarship Applications Now Being Taken

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…

Continue Reading
More Articles
https://www.nfmidwest.org/wp-content/uploads/2017/12/Moertel-400x320-slide-400x240.jpg

NF1 – A Deeper Overview

Just in case you missed our NF Midwest Symposium and iNFo Fair in November (even if you didn’t and just…

Continue Reading
More Articles

NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Funding Through the CDMRP By State

Every year NF Midwest staff and volunteers travel to Washington, DC to advocate for research dollars for neurofibromatosis and schwannomatosis through the…

NF1 Study Looking for Children Ages 4 to 6

Attention, parents of children (ages 4-6) with neurofibromatosis Type 1, help researchers learn more about your child’s attention abilities! Purpose…

Resiliency for NF Study – Looking for Participants

Are you feeling stressed? Are your NF symptoms bothersome? The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical…

Get the Latest NF News & Updates

Sign up for our blog and always be up-to-date with Neurofibromatosis