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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Happy Haddie Says #TheWordIs

Join “Happy Haddie” and the “CrazyTwins” in the campaign to spread the word! What’s the word? #TheWordIs neuro-fibroma-tosis! Take your…

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News: PhD Thesis Shows Lower Resistance to Insulin in Neurofibromatosis Type 1

The following is a blog post by Dr. Luiz Rodrigues . Originally posted in Portuguese on March 1, 2017. Additions and…

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Spring 2017 Neurofibromatosis Midwest Newsletter

Check out our Spring 2017 NF Midwest Newsletter! The highlights of this issue include… An announcement of research grants given…

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Five recommendations for people with NF2

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on March 27, 2017. Additions and translation…

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Selumetinib Research Question

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on January 13, 2017. Additions and translation…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

haddie

Happy Haddie Says #TheWordIs

Join “Happy Haddie” and the “CrazyTwins” in the campaign to spread the word! What’s the word? #TheWordIs neuro-fibroma-tosis! Take your…

Acucar-diabetes-2

News: PhD Thesis Shows Lower Resistance to Insulin in Neurofibromatosis Type 1

The following is a blog post by Dr. Luiz Rodrigues . Originally posted in Portuguese on March 1, 2017. Additions and…

Laura Interview

Wisconsin 57 Interview Kicks of NF Awareness Month

Let’s hear it for Laura Fillmore who  kicked off NF Awareness month with an amazing interview on Wisconsin’s 57 Talk of the…

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