Celebrating 35 Years
neurofibromatosis walk

2021 Walk4NF YOUR WAY

Join us virtually as we Walk4NF YOUR WAY! Safely meet up with friends or family and have fun!

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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2021 NF1 Diagnostic Criteria Update

An update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…

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2022 Young Adult Leadership Program

Are you a young adult living with NF and want to make a difference in your community? In addition to…

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Camp New Friends

Camp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to…

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NF Power Hours

The Covid-19 pandemic has clearly had a tremendous impact on us all. Perhaps the most affected area, aside from medical…

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Transitioning to Adulthood

NF Midwest is proud to announce an upcoming webinar and resource produced by The NF Collective about transitioning to adult…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

2021 NF1 Diagnostic Criteria Update

An update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…

2022 Young Adult Leadership Program

Are you a young adult living with NF and want to make a difference in your community? In addition to…

Camp New Friends

Camp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to…

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