Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 4th          • Madison, WI – May 18th;
• Naperville, IL – June 1st            • Fort Wayne, IN – Sept 21st

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Rick – A Face of NF

My name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…

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Marissa- A Face of NF

Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years-old, and I’m the only one in my…

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Collin- A Face of NF

Hi, my name is Jean. My son, Collin, was diagnosed with NF1 at the age of 1. He was a…

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Jean – A Face of NF

  I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…

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Danielle & Bernadette – A Face of NF

  Growing up I always knew I was different.  I had spots all over my body. I actually thought for…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

Rick – A Face of NF

My name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…

Marissa- A Face of NF

Hi! I was diagnosed with neurofibromatosis type 1 when I was 3 years-old, and I’m the only one in my…

Collin- A Face of NF

Hi, my name is Jean. My son, Collin, was diagnosed with NF1 at the age of 1. He was a…

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