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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Special Article for Plastic Surgeons

After two years of hard work by NF Midwest, last year we were able to get the American Medical Association…

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New NF Clinic in Chicago Suburbs

Big news! We have now established an neurofibromatosis (NF) clinic in the Chicago suburbs for adults and children with NF….

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New Codes for Removing a High Quantity of Neurofibromas

Leading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes approved. For two years NF Midwest has…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

12 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

cpt cover

Special Article for Plastic Surgeons

After two years of hard work by NF Midwest, last year we were able to get the American Medical Association…

nik-machado

New NF Clinic in Chicago Suburbs

Big news! We have now established an neurofibromatosis (NF) clinic in the Chicago suburbs for adults and children with NF….

capitol photo

Senate Bill Threatens NF Research

SENATE BILL THREATENS NEUROFIBROMATOSIS AND OTHER RESEARCH! Update: Thanks to the grassroots efforts of NF supporters and those for research on…

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