Celebrating 35 Years

Don't Miss Our Annual Symposim and iNFo Fair! October 20th in Hoffman Estates, IL

Save the date and look for registration to be open soon!

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Great Steps WALK4NF Get registered now!

We have one more 2018 Walk4NF in  Fort Wayne, IN on September 15th

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Supporting Well Siblings

NF Midwest is very excited to add a topic that has been requested in the past, but never touched upon…though…

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Symposium Topic: Care Guidelines for Adults with NF1

For adults with neurofibromatosis (NF) type 1, finding good care and doctors who are knowledgeable about the many complications and variations…

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Job Discrimination and Employee Rights

We’re excited to tell you about another one of our presenters for our October 20th NF Midwest Symposium and iNFo…

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More Articles
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Man Who’s Had 25 Surgeries to Speak at Symposium

We almost have all our presenters set for our October 20th NF Midwest Symposium and iNFo Fair.  To see the…

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Sam – A Face of NF

Sam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

neurofibromatosis siblins nf nf1

Supporting Well Siblings

NF Midwest is very excited to add a topic that has been requested in the past, but never touched upon…though…

Symposium Topic: Care Guidelines for Adults with NF1

For adults with neurofibromatosis (NF) type 1, finding good care and doctors who are knowledgeable about the many complications and variations…

Job Discrimination and Employee Rights

We’re excited to tell you about another one of our presenters for our October 20th NF Midwest Symposium and iNFo…

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