Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 4th          • Madison, WI – May 18th;
• Naperville, IL – June 1st            • Fort Wayne, IN – Sept 21st

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The Faces of Neurofibromatosis

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Read Their Stories

NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…

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Ify – A Face of NF

My husband and I had never heard of NF1 until May 2015 when our daughter, Ifunanya or Ify (pronounced “eff-ee”),…

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2019 Scholarship Applications Now Being Accepted

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…

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NF Midwest Supports Area Clinical Trials

If you’ve been paying any attention to NF research in the last several years you’ll have noticed that in clinical…

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Jay – A Face of NF

Jay, 10 Mos. Our sweet baby boy Jay was diagnosed with NF Type 1 in May of 2018 at six…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

advocacy lobbying neurofibromatosis

We Need Your Personal Letters for Congress

In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…

Ify – A Face of NF

My husband and I had never heard of NF1 until May 2015 when our daughter, Ifunanya or Ify (pronounced “eff-ee”),…

neurofibromatosis, neurofibromas, scholarship

2019 Scholarship Applications Now Being Accepted

If you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of…

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