Celebrating 41 Years

The Time Is NOW

For Research!

Gift the Gift of Hope this Giving Season

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2024 Walk4NF

Stroll, Celebrate, Connect

Columbia, MO April 20 | Madison, WI May 11

Indianapolis, IN May 18 | Naperville, IL June TBD

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NO ONE FIGHTS ALONE!

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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New Support Groups Re-Launching in February

NF Midwest recognizes the unique challenges that accompany living with neurofibromatosis (NF), impacting both individuals with the condition and their…

Continue Reading
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Unleash Your Impact: DIY Fundraising Spotlight

NF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…

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November 15th is National Philanthropy Day: Celebrating Acts of Giving and Impact at NF Midwest

National Philanthropy Day is a cherished occasion that shines a spotlight on individuals who dedicate their resources, time, and unique…

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November is National Epilepsy Awareness Month

Did you know that November is National Epilepsy Awareness Month? According to the Epilepsy Foundation, individuals with NF1 are at…

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Empower Your Health: Health Literacy Awareness Month

October is a busy month when it comes to health awareness campaigns, and among them is Health Literacy Awareness. This…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

New Support Groups Re-Launching in February

NF Midwest recognizes the unique challenges that accompany living with neurofibromatosis (NF), impacting both individuals with the condition and their…

Unleash Your Impact: DIY Fundraising Spotlight

NF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…

November 15th is National Philanthropy Day: Celebrating Acts of Giving and Impact at NF Midwest

National Philanthropy Day is a cherished occasion that shines a spotlight on individuals who dedicate their resources, time, and unique…

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