Celebrating 35 Years

Great Steps WALKS 4NF Start raising funds and awareness now!

• Columbia, MO – May 4th          • Madison, WI – May 18th;
• Naperville, IL – June 1st            • Fort Wayne, IN – Sept 21st

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The Faces of Neurofibromatosis

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NO ONE FIGHTS ALONE!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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BIG NEWS: Drug up for FDA Approval for NF1 Plexiforms

Big news just hit…though it has been expected! Many of us have been following the success of the drug selumetinib…

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iNFo Fair 2019: Cutaneous Neurofibromas

When I started as the executive director of NF Midwest in 2008 I had already served on the NF Midwest…

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iNFo Fair 2019: Encouraging Social Connections

We’re so excited to have a family and kid favorite, Sandra Cushner-Weinstein LICSW, returning to speak at our November 9th…

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New Study Results on Pain and Patients with Neurofibromatosis Type 1

Frank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…

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Sign Up for a Resiliency Study on NF

Massachusetts General Hospital is looking for adults with NF1, NF2, or Schwannomatosis to participate in a research study to enhance…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

BIG NEWS: Drug up for FDA Approval for NF1 Plexiforms

Big news just hit…though it has been expected! Many of us have been following the success of the drug selumetinib…

iNFo Fair 2019: NF2 Research

Have you ever wondered what drives people to accomplish great things in their line of work? Steve Jobs once said…

iNFo Fair 2019: Cutaneous Neurofibromas

When I started as the executive director of NF Midwest in 2008 I had already served on the NF Midwest…

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