Learn

With a rare condition like NF, knowledge matters. This is a lifelong diagnosis, and while many individuals thrive, not every doctor will be an expert. Being informed helps you advocate, prepare, and navigate care with greater confidence over time.

Not every provider knew NF—but learning about it helped us ask the right questions and speak up for our child.”

NF Parent

Be iNFormed. Build knowledge that supports lifelong care and advocacy.

Resource Library

Our Resource Library brings together NF Midwest’s Be iNFormed articles—along with videos, tools, and trusted resources—to help individuals and families better understand the complications, concerns, and questions that can arise when living with NF.

Learn More About NF

Neurofibromatosis (NF) is an umbrella term for several distinct genetic conditions that affect the nervous system. The three primary forms are neurofibromatosis type 1 (NF1), NF2‑related schwannomatosis (NF2‑SWN), and schwannomatosis (SWN). Learn more about what sets these conditions apart.

You’re Not Alone

If you or a loved one has been diagnosed with NF, having the right information and support is key. Our community is here to help you navigate your journey. We connect families with experienced doctors and provide resources to help you feel empowered.

Explore our Resource Library for helpful materials or use our tools to Find NF Care in your area.

Help Ensure that No Fights Alone

Your support helps us provide critical resources, fund research, and build a caring community for everyone affected by NF. Together, we can make a difference.

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