About

NF Midwest brings together individuals and families affected by neurofibromatosis (NF) and schwannomatosis to provide support, resources, and a sense of community. We are dedicated to serving our community across Illinois, Indiana, Iowa, Kentucky, Missouri, and Wisconsin, ensuring no one has to face NF alone.

Our Mission & Vision

Our work is guided by a clear mission: to improve the lives of everyone impacted by NF. We envision a future where those with NF have the support they need to thrive.

Our Story

For years, we’ve been a steadfast source of hope and help for the NF community. Learn more about our journey and the people who have shaped our organization from the very beginning.

Our People. Your Support.

Our strength comes from the dedicated individuals who generously give their time and expertise to serve the NF community.

Staff

Our passionate staff members are here to connect you with resources and support. Meet our team.

Board of Directors

Our volunteer Board of Directors provides essential leadership and strategic guidance, ensuring we remain focused on our goals. See our board members.

Medical Advisory Board

We are proud to partner with leading medical experts who offer invaluable guidance on NF care and research. Learn about our advisors.

Our Commitment to Transparency

We are committed to being responsible stewards of your support. Our financial information is available for you to review, reflecting our dedication to transparency and accountability.

Be a Part of Our Community

Whether you’re looking for support or want to make a difference, there’s a place for you at NF Midwest. Together, we can create a brighter future for everyone affected by NF.

Learn How to Get Involved