NF Midwest Care Impact Grants provides funding to individuals, clinics, or organizations for a program or project that directly impacts and improves the care of adults and children with neurofibromatosis and/or schwannomatosis in NF Midwest’s region of Illinois, Indiana, Iowa, Kentucky, Wisconsin, or Missouri.

The Care Impact Grant program reflects NF Midwest’s commitment to not only cure neurofibromatosis and schwannomatosis, but to help people with NF live full and productive lives.

The NF Midwest Care Impact Grant program seeks to fund projects that will make a tangible difference in the lives of people with NF. Grant applications must meet program requirements and will be selected through a review process. This program is supported by the proceeds of our Walk4NF events and generous individual donors.

Proposal Requirements

To be considered for funding, your program or project should meet the following requirements:

  1. Contribute to the mission of NF Midwest which is to improve the lives of adults and children with neurofibromatosis or schwannomatosis through C.A.R.E.S. (Clinics, Awareness, Research, Education, and Support) and specifically to improving care or access to care.
  2. Benefit individuals in the NF Midwest region or an underserved segment of our NF Midwest community and demonstrate real and identifiable change.
  3. Improve care or include active and ongoing involvement of people with NF or family members
    who will benefit from the program or project.
  4. Be an original idea, or an ongoing program/project that has a measurable impact on the NF
    community or individual patients.
  5. Have a clear description and general understanding of the processes and resources needed to
    implement and disseminate the program or project, including:
    • Clearly stated and focused aim or aims
    • Specific milestones and measures of success
    • A completed application, a summary covering the requirements above, detailed budget, budget justification, and other funding sources.
  6. May not be dedicated to clinical or basic research, be used solely to purchase equipment, or be
    used for lobbying and fundraising activities.

Eligibility

Applicants may be NF care institutions, individuals, or from a nonprofit organization. For-profit companies are not eligible to apply.

Funding and Reporting

There is not currently a maximum to the amount we will fund, but programs under $5,000 are preferred. Reporting requirements will be determined by the type of project or program.

Examples of Projects or Programs

Projects that might be funded by a Care Impact Grant include, but are not limited to:

  • Providing travel funds or other assistance to patients to increase access to care.
  • Creating a support group, OT/PT group, kids’ group, or parents’ group.
  • Improving NF knowledge of a physician or clinical staff.
  • Improving knowledge and understanding of NF that benefits the patient community.

How to Apply

Currently, we have two annual application windows. Applications received by August 31st will be approved by October 15th. Applications by February 28th, will be approved by March 15th. If you have an idea or a question, please submit an LOI to Diana or call at 630-945-3562. We would be happy to discuss the likelihood funding your proposal.

Submit your application or send your completed proposal with all required details via email or mail to NF Midwest, 473 Dunham Rd, Suite 3, St. Charles, IL 60174.

Ready to Improve NF Care?

Your innovative ideas can make a tangible difference in the lives of people with NF. If you have a project that aligns with our mission, we encourage you to reach out and apply for a Care Impact Grant.

Care Impact Grant Application