Join “Happy Haddie” and the “CrazyTwins” in the campaign to spread the word! What’s the word? #TheWordIs neuro-fibroma-tosis!
Take your video of people saying the word (or mangling the word) neurofibromatosis and share it using the hashtage #TheWordIs. Be sure to share a link such as this one at www.nfmidwest.org so that people can learn what neurofibromatosis is.
Offered by: University of Colorado AnschutzConducted by: Katelyn Glowinski, genetic counseling student, master’s program This research study is designed to gain a better understanding of healthcare barriers faced by adults with Neurofibromatosis Type 1 (NF1), as well as evaluate any associations between these barriers and your self-reported neuropsychiatric or mental health status. If you join... Read More
Rachel was 13 when she first attended Camp NF. At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF. “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More
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