Join “Happy Haddie” and the “CrazyTwins” in the campaign to spread the word! What’s the word? #TheWordIs neuro-fibroma-tosis!
Take your video of people saying the word (or mangling the word) neurofibromatosis and share it using the hashtage #TheWordIs. Be sure to share a link such as this one at www.nfmidwest.org so that people can learn what neurofibromatosis is.
If you or someone you love is living with NF, you know the costs can add up: therapies, assistive devices, specialists, and more. An ABLE account is a savings tool built to help with exactly that. The Basics ABLE stands for Achieving a Better Life Experience. It’s a tax-advantaged savings account for people with disabilities.... Read More
For young children with neurofibromatosis, medical appointments can feel big, unfamiliar, and sometimes scary. An eye exam, an MRI, a doctor’s visit, or even the mention of a needle can bring up questions that are hard for a small child to understand — especially between the ages of 3 and 7, when imagination is strong... Read More
Responses