Your story matters. Whether you’re an adult living with neurofibromatosis, a parent sharing your child’s experience, or a friend supporting a loved one, your voice helps others understand what NF really means and makes our community stronger.

Your Voice Has Power

Sharing your experience is one of the most effective ways to make a difference. Here’s how your story can help:

Raise Awareness

Personal stories bring NF out of the shadows. They help the public understand the realities of living with the different types of NF, including neurofibromatosis and schwannomatosis.

Build Community

Your journey can make someone else feel less alone. Stories connect us, creating a supportive network for everyone affected by NF.

Inspire Hope

By sharing your challenges and triumphs, you offer encouragement and strength to others, especially those who are newly diagnosed.

How We’ll Feature Your Story

We love to spotlight the incredible people in our community! Your story might appear on our website, in our newsletter, or on our social media channels. We want to celebrate the real faces and voices of NF. We will always connect with you before sharing to make sure you’re comfortable with how your story is presented.

Share Your Story and Spread Awareness

Ready to make an impact? Please fill out the form below to get started. We can’t wait to hear from you!

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    More Ways to Make a Difference

    Sharing your story is just one way to support the NF community. Learn about other opportunities to contribute, from volunteering to donating.

    Get Involved