NF Midwest can’t exist without your help. We rely on the fundraising of our driven, dedicated NF community.
Raise funds for research, improving clinical care, education, and awareness.
Our Walks4NF brings friends, family, and co-workers together as one community for the neurofibromatosis cause. They are full of fun and friendship and raise funds and awareness for NF.Find Your Local Walk
Get creative and invent new ways to improve the lives of people with NF. If you don’t have any ideas, we can guide you and possibly pair you with someone else who is looking to do something.Get Started
Give while shopping or browsing; donate time or materials; give stock; add NF Midwest to your will; get matching gifts from your employer. These are just a few of the other ways that you can give and make a difference.Find out more
Every year Sam and his family hold a music and brew event in Carlinville, IL.Visit Fundraiser Page
Every year since 2012 Steve Reason has organized NF Midwest’s participation in John Deere’s Birdies for Charity program every year.Visit Fundraiser Page
January 30, 2016
Always looking to give back and to help others, Aydin’s family and friends put together a 9 pin bowling party to raise funds for their Chippewa Falls Great Steps 4NF team.Visit Fundraiser Page
Raised $8,600 with goal of $8,000
June 4, 2016
The Great Steps 4NF Naperville team, Caitlin’s Promise, consist of friends and family of Caitlin who died in November 2013. Their efforts are a part of the promise they have made that she will never be forgotten.Visit Fundraiser Page
Raised $10,235 with goal of $10,000
May 5, 2015
Crystal Presson held her 2nd Color Me A Cure 5K Run and 1 Mile Family Fun Walk in Malden, Missouri to raise funds in honor of her son Alex.
Raised $5,400 with goal of $5,000
Several NF families, individuals and friends came together and held a Taco Dinner and Leisuretime Billiards in East Moline, IL.
Raised $2,738 with goal of $3,000
Check out past and present events for all NF Midwest or view the full calendar.
I recently learned I have NF1 at the age of 29. Iam blown away with how fast these tumors are growing and haven't got a clue how to start, where to begin , or if I even want to know anymore [about] this . My heart is broken.... I took pride in my appearance and being a young female it's hard to explain to anyone that these are not warts or STDs. I just need help with excepting the reality of my condition, so thank you from the bottom of my heart for reminding me I'm not alone and giving information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions then I began with. So once again THANK YOU FOR CARING.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.