NF Midwest can’t exist without your help. We rely on the fundraising of our driven, dedicated NF community.
Funds raised are used for research, improving clinical care and awareness. This includes the expense of direct grants to researchers and clinicians, as well as the expense of programs such as our symposium and the everyday cost of providing assistance to families looking for support and information.
Our Great Steps 4NF® walks bring friends, family and co-workers together as one community for the neurofibromatosis cause. They are full of fun and friendship and raise funds and awareness for NF.Find Your Local Walk
Get creative and invent new ways to improve the lives of people with NF. If you don’t have any ideas, we can guide you and possibly pair you with someone else who is looking to do something.Get Started
Give while shopping or browsing; donate time or materials; give stock; add NF Midwest to your will; get matching gifts from your employer. These are just a few of the other ways that you can give and make a difference.Find out more
January 30, 2016
Always looking to give back and to help others, Aydin’s family and friends put together a 9 pin bowling party to raise funds for their Chippewa Falls Great Steps 4NF team.Visit Fundraiser Page
Raised $8,600 with goal of $8,000
September 27, 2014
Sam and his family are giving back and paying forward by holding an annual all day music festival featuring 12 hours of progressive bluegrass, Americana, and Roots music. The day also includes beer, food bag tournaments and other fun stuff.Visit Fundraiser Page
Raised $22,000 with goal of $20,000
June 4, 2016
The Great Steps 4NF Naperville team, Caitlin’s Promise, consist of friends and family of Caitlin who died in November 2013. Their efforts are a part of the promise they have made that she will never be forgotten.Visit Fundraiser Page
Raised $10,235 with goal of $10,000
May 5, 2015
Crystal Presson held her 2nd Color Me A Cure 5K Run and 1 Mile Family Fun Walk in Malden, Missouri to raise funds in honor of her son Alex.
Raised $5,400 with goal of $5,000
July 1, 2015
Steve Reason has organized NF Midwest’s participation in John Deere’s Birdies for Charity program every year since 2011 and every year he raises $2,000 or more. Be sure to participate as you could win a 2 year lease on a Lexus.
Raised $2,200 with goal of $2,000
August 15, 2015
Several NF families, individuals and friends came together and held a Taco Dinner and Leisuretime Billiards in East Moline, IL.
Raised $2,738 with goal of $3,000
Check out past and present events for all NF Midwest or view the full calendar.
4 years ago, my daughter was diagnosed with Neurofibromatosis at the age of 4 months. I had never heard of it. I was given a brochure for NF Midwest from her doctor and I signed up for their symposium. Shortly thereafter, I received a call from the Director, Diana. She let me know that her husband and two children have NF as well. She asked if I had any questions, and let me know that they were there for us. I had just received shocking, frightening news about my infant child. I didn't know where to turn, and suddenly I had a place to go for answers and help. NF Midwest has been there for my family every step of the way. We are so grateful for the work they do, and proud to support it.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.