Participate

Every step forward in understanding and treating NF is made possible by individuals who participate in research studies. Your involvement can help accelerate discoveries and bring hope to thousands. Learn more about current opportunities to contribute to science.

Use your story to raise awareness and inspire change. As an NF advocate, you can help educate lawmakers, community leaders, and the public about the challenges of living with neurofibromatosis. Together, we can create a more supportive and understanding world for the entire NF community.

You don’t have to be an expert to spread awareness.
There are big and small ways to raise awareness about NF; during NF Awareness Month in May and all year long. From sharing information and starting conversations to participating in awareness activities, every action helps make NF more visible and better understood.

From helping out at local events to providing support to other families, our volunteers are the heart of our community. We have opportunities for every skill set and schedule. Find out how you can lend a hand.