Navigating a neurofibromatosis (NF) diagnosis can feel overwhelming, but you don’t have to go through it alone. We’ve put together a comprehensive packet of iNFormation, completely free of charge, to help you and your family understand NF and connect with the resources you need. Whether you’re a parent of a newly diagnosed child or an adult living with NF, this packet is for you.

Clear, Simple Explanations

Get easy-to-understand information about the different types of NF, written with care for families, not just medical professionals.

Local Resources

Find a list of recommended doctors and clinics in your area. We’re here to help you find the best NF care close to home.

A Community of Support

Learn about the many ways to connect with others who understand, from our annual NF Camp to virtual Community Conversations.

Get Your Free iNFormation Packet

Your privacy is important to us. We will never share your information. You can read our full Privacy Policy for more details.

You Are Part of Our Community

Requesting a packet is a great first step. There are so many other ways to connect with the NF Midwest family and find the support you need.

More Ways to Get Involved