Join our community for NF Power Hours, a series of free online events designed to bring expert knowledge directly to you. These sessions offer valuable insights and practical advice on living with neurofibromatosis and schwannomatosis. It’s a space to learn, connect, and feel empowered. They MAY be recorded, but not always.
Upcoming Power Hours
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Power Hour: Tumors in NF1
At this NF Power Hour, Dr. Miriam Bornhorst, a neuro-oncologist at Lurie Children’s Hospital will provide an overview of the various types of tumors associated with Neurofibromatosis Type 1 (NF1), including cutaneous neurofibromas, plexiform neurofibromas,…
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Power Hour: Plexiform Neurofibromas in Adults with NF1
At this NF Power Hour, Dr. Angela Hirbe, a medical oncologist who treats adults with NF at Washington University in St. Louis will discuss plexiform tumors with a focus on adults with NF. This session…
Past Power Hour Recordings
We frequently record Power Hours and make them available for public viewing, but this is not always the case. Some will be available here.