Join our community for NF Power Hours, a series of free online events designed to bring expert knowledge directly to you. These sessions offer valuable insights and practical advice on living with neurofibromatosis and schwannomatosis. It’s a space to learn, connect, and feel empowered. They MAY be recorded, but not always.
Upcoming Power Hours
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Common Medical Terms on the Patient Journey (English)
This program introduces key medical terms, tests, procedures, and clinical trial concepts related to rare disease care, while helping patients and caregivers prepare for healthcare visits and communicate with confidence. Presented by Joe Booe from Alexion.Joe Booe is a…
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Términos médicos habituales en el proceso asistencial del paciente (Español)/Common Medical Terms on the Patient Journey
Este programa presenta términos médicos clave, pruebas, procedimientos y conceptos relacionados con los ensayos clínicos en el ámbito de la atención a las enfermedades raras, al tiempo que ayuda a los pacientes y a sus…
Past Power Hour Recordings
We frequently record Power Hours and make them available for public viewing, but this is not always the case. Some will be available here.