Thank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam, Max Rosenberg, Don, Karissa, and Diana Haberkamp. Your recent visit to Washington, D.C., from February 4th to 6th, where you engaged with representatives and senators from Illinois and Missouri, exemplifies the collective strength of NF…
Read MoreNovember 15th is National Philanthropy Day: Celebrating Acts of Giving and Impact at NF Midwest
National Philanthropy Day is a cherished occasion that shines a spotlight on individuals who dedicate their resources, time, and unique talents to drive change in the causes and communities that hold a special place in their hearts. At NF Midwest, we’re incredibly fortunate and deeply appreciative of the unwavering support from our community members. Thanks…
Read MoreAugust 30th is National Grief Awareness Day
August 30th is National Grief Awareness Day. National Grief Awareness Day was founded by Angie Cartwright in 2014 to normalize grief and educate people on the process. Psychiatrist and researcher Elizabeth Kübler-Ross states that there are five stages of grief: denial, anger, bargaining, depression, and acceptance. Over time shock, disbelief, and reconstruction have been added to the list of…
Read MoreDo You Know the Price of Your Hospital’s Items and Services?
The Hospital Price Transparency is a regulation introduced by the Centers for Medicare and Medicaid Services (CMS) and took effect on January 1, 2021. This rule was implemented to force hospitals to be more transparent about the prices of services provided. Before this rule, finding a clear answer to what services may cost could be…
Read More2023 Scholarship Recipients
For many years NF Midwest has provided the opportunity for students from our area diagnosed with NF1, NF2-SWN, or schwannomatosis and pursuing post-high school education the opportunity to earn the NF Midwest Scholarship of $1000. This fantastic opportunity is funded by a charitable trust left to NF Midwest by Frances and Irma Napolilli. Applicants who…
Read MoreThe Power of Passion: Volunteer Spotlight
Christina and Kristi from Walk4NF Columbia accomplished some amazing things recently. Christina and Kristi have been the committee chairs of Walk4NF Columbia since 2019. These two lovely people are the queens of hustle. Literally everywhere they go, they share their passion and information about NF. In doing that, they have been able to score some…
Read MoreMonthly Giving: Small Gift, Big Impact
A budget friendly way to plan your giving throughout the year. Monthly giving, also known as recurring giving, is a form of charitable giving where you can make regular, ongoing contributions to a nonprofit organization. Instead of making a one-time donation, you can commit to making a monthly gift of a specified amount, typically through…
Read MoreDo it Your Way Fundraising: Doesn’t Have to be Difficult or Time Consuming.
Fundraising is an essential part of keeping organizations operating to continue their mission of research, support, and advocacy. Events such as galas, walks and concerts can help to raise funds, however big events are not the only way to make a big impact. Do-it-Your Way fundraisers, no matter how big or small, can make a…
Read MoreSpotlight on Hosting a DIY Event: E’s Hulksters
The captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event was like! How did you decide on a trivia night? DH: Trivia Nights have been a fun outing with our friends & family in the past, and we thought that we could put on a pretty…
Read MoreShow Your Stripes: Awareness for Rare Disease Day
Between 25-30 million Americans are living with a rare disease according to the National Organization for Rare Disease (NORD). A disease is considered to be rare when it affects less than 1 in 2,000 people. As of today, there are over 7000 rare diseases. People living with a rare disease often face isolation, lack of support and…
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