Thank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam, Max Rosenberg, Don, Karissa, and Diana Haberkamp. Your recent visit to Washington, D.C., from February 4th to 6th, where you engaged with representatives and senators from Illinois and Missouri, exemplifies the collective strength of NF…
Read MoreNovember 15th is National Philanthropy Day: Celebrating Acts of Giving and Impact at NF Midwest
National Philanthropy Day is a cherished occasion that shines a spotlight on individuals who dedicate their resources, time, and unique talents to drive change in the causes and communities that hold a special place in their hearts. At NF Midwest, we’re incredibly fortunate and deeply appreciative of the unwavering support from our community members. Thanks…
Read MoreUnleash Your Impact: DIY Fundraising Spotlight
NF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the Frano’s daughters crafted beautiful bracelets, turning their creative energy into a force for good. Additionally, Kim Frano was a part of the Pink Balls who participated in the Lake Bluff engaged in a wiffleball tournament,…
Read MoreEmpower Your Health: Health Literacy Awareness Month
October is a busy month when it comes to health awareness campaigns, and among them is Health Literacy Awareness. This observance is dedicated to the importance of acquiring and comprehending health-related information and using that knowledge to make informed decisions about one’s well-being. I’ve frequently been in situations where I’ve left a medical appointment with…
Read MoreBreast Cancer Awareness Month: Know the NF Risk
October is breast cancer awareness month. Studies have shown that breast cancer can affect 1 in 8 women. For women with an average risk of breast cancer, the recommendation is to start breast cancer screenings at age 40. For those at a higher risk, such as women with neurofibromatosis type (NF1), the current recommendation is to start screenings by age…
Read MoreAugust 30th is National Grief Awareness Day
August 30th is National Grief Awareness Day. National Grief Awareness Day was founded by Angie Cartwright in 2014 to normalize grief and educate people on the process. Psychiatrist and researcher Elizabeth Kübler-Ross states that there are five stages of grief: denial, anger, bargaining, depression, and acceptance. Over time shock, disbelief, and reconstruction have been added to the list of…
Read MoreDo You Know the Price of Your Hospital’s Items and Services?
The Hospital Price Transparency is a regulation introduced by the Centers for Medicare and Medicaid Services (CMS) and took effect on January 1, 2021. This rule was implemented to force hospitals to be more transparent about the prices of services provided. Before this rule, finding a clear answer to what services may cost could be…
Read MoreCheck out Videos From the 2021 iNFo Fair and Register for the 2023 iNFo Fair!
Adapting to the challenges of the pandemic and finding innovative ways to continue providing information NF Midwest, NF Northeast, Texas NF, and The Littlest Tumor Foundation came together to host the 2021 iNFo Fair virtually. Videos and information on that event are still available here. This year’s event is in person! With a lineup of speakers like Dr….
Read MoreThank You for Joining Us at Walk4NF in Columbia, MO!
We want to extend the warmest of thank-yous for being a part of the incredible Walk4NF fundraiser in Columbia, MO on June 24, 2023. It was a very hot day, but your unwavering support made it a great one. Together, we stepped forward to raise awareness and funds for NF, forging a path towards a…
Read MoreThank You Walk4NF Naperville 2023
The Naperville 2023 Walk4NF is in the books! We are overwhelmed with gratitude as we reflect on the incredible success of the NF Midwest Walk4NF event held on June 3, 2023. The outpouring of support and the enthusiastic participation from each and every one of you made the event truly remarkable. On behalf of the entire NF Midwest team…
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