August 30th is National Grief Awareness Day. National Grief Awareness Day was founded by Angie Cartwright in 2014 to normalize grief and educate people on the process. Psychiatrist and researcher Elizabeth Kübler-Ross states that there are five stages of grief: denial, anger, bargaining, depression, and acceptance. Over time shock, disbelief, and reconstruction have been added to the list of…
Read MoreDo You Know the Price of Your Hospital’s Items and Services?
The Hospital Price Transparency is a regulation introduced by the Centers for Medicare and Medicaid Services (CMS) and took effect on January 1, 2021. This rule was implemented to force hospitals to be more transparent about the prices of services provided. Before this rule, finding a clear answer to what services may cost could be…
Read MoreCheck out Videos From the 2021 iNFo Fair and Register for the 2023 iNFo Fair!
Adapting to the challenges of the pandemic and finding innovative ways to continue providing information NF Midwest, NF Northeast, Texas NF, and The Littlest Tumor Foundation came together to host the 2021 iNFo Fair virtually. Videos and information on that event are still available here. This year’s event is in person! With a lineup of speakers like Dr….
Read MoreThank You for Joining Us at Walk4NF in Columbia, MO!
We want to extend the warmest of thank-yous for being a part of the incredible Walk4NF fundraiser in Columbia, MO on June 24, 2023. It was a very hot day, but your unwavering support made it a great one. Together, we stepped forward to raise awareness and funds for NF, forging a path towards a…
Read MoreThank You Walk4NF Naperville 2023
The Naperville 2023 Walk4NF is in the books! We are overwhelmed with gratitude as we reflect on the incredible success of the NF Midwest Walk4NF event held on June 3, 2023. The outpouring of support and the enthusiastic participation from each and every one of you made the event truly remarkable. On behalf of the entire NF Midwest team…
Read MoreJune 8th is World Brain Tumor Day
June 8th is World Brain Tumor Day. American Brain Tumor Association explains a brain tumor as a growth of abnormal cells that form in the brain. These growths can be cancerous or benign. Often the first signs of brain tumors are headaches although many experience a wide variety of have symptoms such as vision loss,…
Read MoreA Heartfelt Thank You to Madison and Indianapolis
Dear Walk4NF Participants, Supporters, and Volunteers, Our first two walks are done! It is with immense gratitude and joy in our hearts as we thank Madison and Indianapolis for their outstanding participation and support during the Walk4NF events held on May 13th and May 20th. Your unwavering dedication and commitment have made these events resounding…
Read More2023 Scholarship Recipients
For many years NF Midwest has provided the opportunity for students from our area diagnosed with NF1, NF2-SWN, or schwannomatosis and pursuing post-high school education the opportunity to earn the NF Midwest Scholarship of $1000. This fantastic opportunity is funded by a charitable trust left to NF Midwest by Frances and Irma Napolilli. Applicants who…
Read MoreSpring 2023 NF Midwest Newsletter
Check out our Spring 2023 NF Midwest Newsletter! The highlights of this issue include… Page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Page 7 Back Page
Read MoreThe Power of Passion: Volunteer Spotlight
Christina and Kristi from Walk4NF Columbia accomplished some amazing things recently. Christina and Kristi have been the committee chairs of Walk4NF Columbia since 2019. These two lovely people are the queens of hustle. Literally everywhere they go, they share their passion and information about NF. In doing that, they have been able to score some…
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