Connecting with others who understand the journey with NF can make all the difference. Our online events offer a welcoming space to learn from experts, share experiences, and build relationships from the comfort of your own home. Whether you’re newly diagnosed, a longtime community member, or a caregiver, there’s a place for you here.
Find an event that interests you in the list below. Simply click to see more details and complete the registration. All of our online events are free to attend, and we can’t wait to see you there!
Upcoming Online Events
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Productive Conversations with Healthcare Providers (English)
This program describes the components of productive conversations, such as preparation, organization, and framing of thoughtful questions. It examines ways to make conversations productive with physicians and other members of the care team. Presented by…
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Conversaciones constructivas con los profesionales (Español)/Productive Conversations with Healthcare Providers
Este programa describe los elementos que conforman una conversación productiva, como la preparación, la organización y la formulación de preguntas bien planteadas. Analiza cómo lograr que las conversaciones con los médicos y otros miembros del…
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NF1 Peer Conversations
Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest,…
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NF Parent Conversations
Connecting with others who understand your journey can make all the difference. Our Parent Community Conversations offer a welcoming online space for parents and caregivers affected by NF to share experiences, ask questions, and build…
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Common Medical Terms on the Patient Journey (English)
This program introduces key medical terms, tests, procedures, and clinical trial concepts related to rare disease care, while helping patients and caregivers prepare for healthcare visits and communicate with confidence. Presented by Joe Booe from Alexion.Joe Booe is a…
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Términos médicos habituales en el proceso asistencial del paciente (Español)/Common Medical Terms on the Patient Journey
Este programa presenta términos médicos clave, pruebas, procedimientos y conceptos relacionados con los ensayos clínicos en el ámbito de la atención a las enfermedades raras, al tiempo que ayuda a los pacientes y a sus…
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NF1 Peer Conversations
Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest,…
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NF Parent Conversations
Connecting with others who understand your journey can make all the difference. Our Parent Community Conversations offer a welcoming online space for parents and caregivers affected by NF to share experiences, ask questions, and build…
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NF1 Peer Conversations
Join other adults living with NF1 for NF1 Peer Conversations—an online, supportive space to connect, share experiences, and talk openly about life with NF1. Some conversations will focus on specific topics or feature an expert guest,…