In April 2020 the U.S. Food and Drug Administration (FDA) approved KOSELUGOTM (selumetinib) for use in children over age 2 with neurofibromatosis type 1 who have inoperable plexiform neurofibromas. This is the first drug ever approved specifically for a complication of NF Type 1. Obviously this has been huge news! The process of getting this…
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- NF Parent ConversationsOctober 12, 2026
- Productive Conversations with Healthcare Providers (English)October 20, 2026
- Conversaciones constructivas con los profesionales (Español)/Productive Conversations with Healthcare ProvidersOctober 21, 2026
- NF1 Peer ConversationsOctober 27, 2026
- NF Parent ConversationsNovember 9, 2026
- Common Medical Terms on the Patient Journey (English)November 10, 2026