Category: Clinics/Care

Dr. James Tonsgard, longtime neurologist and Director of the Neurofibromatosis (NF) Clinic at the University of Chicago, has announced that he will retire from seeing patients at the end of 2026. Dr. Tonsgard has served as a clinician at the University of Chicago for 49 years and has led a dedicated NF clinic for more…

NF Midwest is pleased to share an important milestone for the neurofibromatosis (NF) community. Dr. Nikolas Mata-Machado and Dr. Stefania Maraka have been added to the NF Clinic Network, a designation by the Children’s Tumor Foundation. We here at NF Midwest are proud of the work that Dr. Mata-Machado and Dr. Maraka began years earlier….

Have you seen our new video series called Meet the Faces of NF Care? This series is designed to give you, the NF community, a chance to learn more about NF care and the dedicated providers in your area (Illinois, Indiana, Iowa, Kentucky, Wisconsin, and Missouri). Through these informative recordings, you’ll gain valuable insights, including:…

NF Midwest recently provided funds to three NF providers through our Care Impact Grant Program. The NF Care Impact Grant program is an application-based program that  provides funds to selected applicants who have an idea, program, or need that will directly help to improve care, or access to care, to patients with neurofibromatosis. Several months…

If you’ve been paying any attention to NF research in the last several years you’ll have noticed that in clinical trials some drugs are showing a lot of promise in the treatment of NF1 plexiform tumors and NF2 tumors. For over 36 years NF Midwest has been funding research for the many complications of neurofibromatosis type 1,…