Monthly NF Midwest Parent Group Chat
Designed for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing…
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Designed for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing…
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Golf fans and philanthropists, rejoice! The John Deere Classic’s Birdies for Charity program is back, offering you a fantastic way…
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Get the basics of treating NF1 PN from an Alexion Patient Education Manager. Hear about support options available to you…
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Learn about Koselugo and the results seen in children with NF1 PN. Gain access to support programs to help you…
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Gain a new perspective on caring for a child with NF1 PN from this presentation. Learn more about NF1 PN,…
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Join NF Midwest and Children’s Tumor Foundation for appetizers and wonderful conversation to celebrate the kickoff to NF Awareness month….
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Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
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Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
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This Year’s Focus Will Be On Research! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October…
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There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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