Champions of the Fall
Three Months. One Champion. Rally Your Crew! NF Midwest has a new fall fundraising and awareness campaign kicking off on…
Read More
Three Months. One Champion. Rally Your Crew! NF Midwest has a new fall fundraising and awareness campaign kicking off on…
Read More
Press Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…
Read More
Free Educational Event At Maggiano’s Little Italy240 Oakbrook CenterOak Brook, Illinois 60523 Managing NF1 PN can be complex! At Alexion,…
Read More
NeurologyLive recently posted a video series Managing Neurofibromatosis Type 1 Related Plexiform Neurofibroma in Patients of Different Ages. The series…
Read More
There’s some exciting news for those with NF2-related schwannomatosis (NF2-SWN) that might bring hope to treatment options! A recent study…
Read More
Are you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance…
Read More
Have you seen our new video series called Meet the Faces of NF Care? This series is designed to give…
Read More
Dust off your rising helmet and join us as we team up with the Children’s Tumor Foundation to raise funds…
Read More
Care givers need care, too. At this event attendees will gain a new perspective on caring for a child with…
Read More
We are deeply saddened by the passing of Dr. Vincent “Vic” Riccardi, a pioneering expert in neurofibromatosis (NF) research and…
Read More
© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.