Telling Your Child About Their Neurofibromatosis
We frequently get asked about how to tell a child they have neurofibromatosis…or whether to tell them at all. Obviously,…
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Check out past blogs and news!
We frequently get asked about how to tell a child they have neurofibromatosis…or whether to tell them at all. Obviously,…
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Mark October 10th on your calendars now for SamJam 4NF! This will be the second year for this incredible event…
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In April 2013 NF Mid-Atlantic hosted a webinar about the early signs of learning and attention vulnerability in neurofibromatosis type 1. The…
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In February 2013 NF Mid-Atlantic hosted a webinar on “Managing Pain in Neurofibromatosis”. The speaker was Andrew Tyler Putnam, MD from the…
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The Department of Genetics at Stevenson University is conducting a survey on the psychological effects of “looking different” which was…
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We just came across this excellent 2013 “Genetics 101” webinar recording from the RASopathies Foundation. The speaker is Beth Hopkins…
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Recorded in December of 2012 by NF Mid-Atlantic, this webinar focuses on the different areas of cognitive functioning, and how they…
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The NF Network will be presenting an all new webinar on Hearing Preservation/Rehabilitation in Neurofibromatosis Type 2 on July 29th. The presenter will be…
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Neurofibromatosis Midwest is pleased to announced the appointment of Peter Oswald, Carlinville, IL, as a new member of its Board of…
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Join us Saturday, September 5th! Make your plans now to join NF Midwest on Saturday, September 5th in Geneva, Illinois…
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