News/Blog

New NF Clinic in Chicago Suburbs

Posted By NF Midwest | On August 1st, 2016

Big news! We have now established an neurofibromatosis (NF) clinic in the Chicago suburbs for adults and children with NF….

Posted By Diana Haberkamp | On June 7th, 2016

SENATE BILL THREATENS NEUROFIBROMATOSIS AND OTHER RESEARCH! Update: Thanks to the grassroots efforts of NF supporters and those for research on…

Posted By NF Midwest | On May 17th, 2016

In honor of NF Awareness Month, Sera Leavy and Family have generously pledged up to $10,000 in a dollar for dollar…

Posted By NF Midwest | On April 22nd, 2016

We’re excited to have the Madison Mobile DJ Service join us this year for our GS 4NF Madison 2016 walk! Travis…

Posted By Diana Haberkamp | On April 18th, 2016

Help researchers know what people with NF1- associated Plexiform Neurofibromas need! If you or your child has NF1 and a…

Posted By Diana Haberkamp | On April 6th, 2016

Leading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes approved. For two years NF Midwest has…

Posted By NF Midwest | On March 25th, 2016

Are you a student with neurofibromatosis who will be taking college courses in the fall of 2016? This could be…

Posted By Diana Haberkamp | On March 3rd, 2016

The Children’s Hospital of Wisconsin is holding an NF Symposium on Saturday, April 16th from 8:30 am to 12:30 pm….

Posted By Diana Haberkamp | On March 3rd, 2016

The Littlest Tumor Foundation is hosting its sixth annual NF Family Wellness Retreat at the Imago Dei Village campground (Clintonville,…