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Family Tee Up 4NF with Topgolf

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NF Midwest News/Blog

Family Tee Up 4NF at Topgolf

Please join us for an afternoon of  family, new friends, food, fun, raffles, competition and a great cause! Whether you’re…

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Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

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Tori – A Face of NF

I inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…

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Adult Game Night (Chicago)

On Wednesday, June 13th there will be another Adult Game Night in Chicago hosted by Ilene and Emily Bluestein. The…

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Ali – A Face of NF

I was diagnosed with neurofibromatosis type 2 (NF2) at the age of 10. Six Months after I was diagnosed, I…

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