Parents Guide to Learning Disabilities Associated with NF1
Thanks to the work of the BC Neurofibromatosis Foundation and Genefo we now have a great guide for parents about…
Read More
Check out past blogs and news!
Thanks to the work of the BC Neurofibromatosis Foundation and Genefo we now have a great guide for parents about…
Read MoreNeurofibromatosis Midwest is proud to announce our seventeen scholarship recipients for the 2016-2017 academic year. Now in its second year,…
Read More
Marissa and her mom from Madison’s Great Steps team, Marissa’s Mighty Mob, did a fantastic interview on “Talk of the…
Read More
After two years of hard work by NF Midwest, last year we were able to get the American Medical Association…
Read More
This newsletter published in May 2016 features our new logo and a slightly new newsletter design. The highlighs of this issue include……
Read MoreLeading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes approved. For two years NF Midwest has…
Read MoreFour years ago my granddaughter Aydin was diagnosed with neurofibromatosis or NF. To be perfectly honest, I had no idea…
Read More
If you have cutaneous neurofibromas that are causing you any distress you CAN have them removed. They are ALMOST always…
Read More
School is starting! If you have a child with neurofibromatosis type 1 you might find our be iNFormed article NF1 Information for Teachers helpful….
Read More
In April of 2013, NF Mid-Atlantic presented a webinar on the Top 10 Tips for Success in the Special Education…
Read More
© 2026 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.