Spring 2016 Neurofibromatosis Midwest Newsletter
This newsletter published in May 2016 features our new logo and a slightly new newsletter design. The highlighs of this issue include……
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Check out past blogs and news!
This newsletter published in May 2016 features our new logo and a slightly new newsletter design. The highlighs of this issue include……
Read MoreLeading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes approved. For two years NF Midwest has…
Read MoreFour years ago my granddaughter Aydin was diagnosed with neurofibromatosis or NF. To be perfectly honest, I had no idea…
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If you have cutaneous neurofibromas that are causing you any distress you CAN have them removed. They are ALMOST always…
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School is starting! If you have a child with neurofibromatosis type 1 you might find our be iNFormed article NF1 Information for Teachers helpful….
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In April of 2013, NF Mid-Atlantic presented a webinar on the Top 10 Tips for Success in the Special Education…
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On July 29, 2015 NF Network hosted a webinar on hearing preservation and rehabilitation in Neurofibromatosis Type 2. The speaker was Derald E. Brackmann,…
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We frequently get asked about how to tell a child they have neurofibromatosis…or whether to tell them at all. Obviously,…
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In April 2013 NF Mid-Atlantic hosted a webinar about the early signs of learning and attention vulnerability in neurofibromatosis type 1. The…
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In February 2013 NF Mid-Atlantic hosted a webinar on “Managing Pain in Neurofibromatosis”. The speaker was Andrew Tyler Putnam, MD from the…
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