Parents of 3 to 18 Year Olds with NF1 Needed!
Are you the parent/caregiver of a child with neurofibromatosis type 1 (NF1) between the ages of 3-18 years? The MIND…
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Check out past blogs and news!
Are you the parent/caregiver of a child with neurofibromatosis type 1 (NF1) between the ages of 3-18 years? The MIND…
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The efforts of our community, our donors, and the advocacy of NF Midwest (and other NF organizations) all worked together…
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NF Midwest is excited to add a new piece about Brainstem Tumors in NF1 to our be iNFormed series. This is…
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The Education and Brain Sciences Research lab at Vanderbilt University is seeking participants for a new research study! The purpose…
Read MoreJOIN US FOR A NIGHT OF FAMILY FUN AND HELP SUPPORT NEUROFIBROMATOSIS WHEN: May 18, 2018 WHERE: PARKVIEW FIELD Fort…
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NF Midwest, in collaboration with NF Northeast, has awarded Dr. Vijaya Ramesh from Massachusetts General Hospital, a grant for research in neurofibromatosis…
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In February AstraZeneca and Merck announced that the U.S. Food and Drug Administration (FDA) granted Orphan Drug Designation (ODD) for…
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Do you have a child interested in attending Camp New Friends, a camp for kids with neurofibromatosis? If so, NF…
Read MoreThe Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, March 17th, from 10 am…
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We are so excited as we plan the 2018 Great Steps Walks 4NF! We DO IT 4NF and hope you…
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