Updated NF1 Information for Medical Professionals
It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
Read More
Check out past blogs and news!
It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
Read More
Internationally renowned for his work on NF, Dr. Bruce Korf has provided an excellent summary of complications in children with NF1. …
Read More
Neurofibromatosis Midwest is proud to announce our eleven scholarship recipients for the 2017-2018 academic year. Now in it’s third year,…
Read More
From Jenn, mom of Audrey, a 5-year-old with NF1 I think your daughter might have a condition called neurofibromatosis. Don’t…
Read More
Erin and Jonathan are big on raising awareness for neurofibromatosis and being advocates for NF Midwest. The two have a…
Read MoreLiving with a chronic illness can be extremely difficult. NF is no exception. The article linked in this blog post…
Read More
We have a new be iNFormed article for our NF Midwest community. be iNFormed articles are written on various subjects of interest…
Read More
Protect federal funds for neurofibromatosis by acting now. Fill out the form below to send your message in support of…
Read More
There is an urgent and devastating threat to neurofibromatosis research, and we urge you, your friends, family and everyone you…
Read More
The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on July 3 2017. Additions and…
Read More
© 2026 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.