Tori – A Face of NF
I inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…
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Check out past blogs and news!
I inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…
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I was diagnosed with neurofibromatosis type 2 (NF2) at the age of 10. Six Months after I was diagnosed, I…
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I was diagnosed with neurofibromatosis type 1 (NF1) when I was 16 years old. As a child in school, I suffered from…
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Great news! A new, detailed clinical practice guideline has been made available on the care of adults with neurofibromatosis type…
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Erin Carter, whose 4 year old son, Cash, was diagnosed with NF in 2015, is determined to raise awareness and…
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NF Midwest is excited to add a new piece about Brainstem Tumors in NF1 to our be iNFormed series. This is…
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NF Midwest, in collaboration with NF Northeast, has awarded Dr. Vijaya Ramesh from Massachusetts General Hospital, a grant for research in neurofibromatosis…
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In February AstraZeneca and Merck announced that the U.S. Food and Drug Administration (FDA) granted Orphan Drug Designation (ODD) for…
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NF Midwest is excited to add another new piece to our be iNFormed series. This is a series of material…
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Adults with NF, get out and meet others! Join us for a fun night of pizza, appetizers and games at…
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