
Levi – A Face of NF
Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…
Read MoreCheck out past blogs and news!
Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…
Read MoreWe inherited NF1 from our mom, Shirley, who passed away from breast cancer at the age of 53. She fought…
Read MoreCheck out our Spring 2018 NF Midwest Newsletter! The highlights of this issue include… Research grants are given to the…
Read MoreThe Fillmore Family (GSWalk4NF Wisconsin/Madison team) invite you to join them at their annual Neighbor Day. This year part of…
Read MoreI inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…
Read MorePlease join the Kentucky NF Support Group for an afternoon of fun, food, and friendship at the Thomas family farm…
Read MoreThe Fillmore Family (GSWalk4NF Wisconsin/Madison team) invite you to join them at their annual Neighbor Nite. This year part of…
Read MoreOn Wednesday, June 13th there will be another Adult Game Night in Chicago hosted by Ilene and Emily Bluestein. The…
Read MoreI was diagnosed with neurofibromatosis type 2 (NF2) at the age of 10. Six Months after I was diagnosed, I…
Read MoreI was diagnosed with neurofibromatosis type 1 (NF1) when I was 16 years old. As a child in school, I suffered from…
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