2018 Scholarship Recipients
Neurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth…
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Check out past blogs and news!
Neurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth…
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Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…
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We inherited NF1 from our mom, Shirley, who passed away from breast cancer at the age of 53. She fought…
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Check out our Spring 2018 NF Midwest Newsletter! The highlights of this issue include… Research grants are given to the…
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I inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…
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I was diagnosed with neurofibromatosis type 2 (NF2) at the age of 10. Six Months after I was diagnosed, I…
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I was diagnosed with neurofibromatosis type 1 (NF1) when I was 16 years old. As a child in school, I suffered from…
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Great news! A new, detailed clinical practice guideline has been made available on the care of adults with neurofibromatosis type…
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Erin Carter, whose 4 year old son, Cash, was diagnosed with NF in 2015, is determined to raise awareness and…
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NF Midwest is excited to add a new piece about Brainstem Tumors in NF1 to our be iNFormed series. This is…
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