Apply to the 2026 NF Young Adult Leadership Program
Are you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
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Check out past blogs and news!
Are you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
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Help Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…
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The European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…
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Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…
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Managing NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
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Topics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP’s, and Social Work in NF.
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Managing NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
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Join NF Midwest, NF physicians, the NF community, and others in celebrating the work of artist Rachel Mindrup and the…
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I Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…
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Neurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation is a powerful exhibition featuring nine works of printmaking, drawing,…
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