Meet the MEKs: A Power Hour 4NF
Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from…
Read More
Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from…
Read More
SamJam Benefit Concert Aims to Reach $100,000 Milestone for NF Research Date: Saturday, April 26, 2025Time: 5:30 PM – LateLocation:…
Read More
Please refer to the flyer for information. Presented by Alexion Pharmaceuticals, Inc.
Read More
The theme this year is being “Be Proactive, Be Informed, Be Heard!“ Join us for an all-day iNFo Fair in…
Read More
Join us to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. We’ll…
Read More
Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…
Read More
Managing NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
Read More
Managing NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
Read More
Learn more about Camp NF (formerly Camp New Friends) at an online meeting on Tuesday, January 28th. Camp NF is…
Read MoreRTI-Health Solutions (RTI-HS) is inviting individuals, aged 18 years and older, who have been diagnosed with NF1-PN to participate in…
Read More
© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
.png)
