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NF Midwest News/Blog

Meet MEK Users: A Power Hour 4NF

Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want…

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Meet the MEKs: A Power Hour 4NF

Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from…

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SamJam Finale!

SamJam Benefit Concert Aims to Reach $100,000 Milestone for NF Research Date: Saturday, April 26, 2025Time: 5:30 PM – LateLocation:…

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2025 iNFo Fair

This Year’s Focus is TBD! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October 25th. Don’t…

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iNFo Fair Recordings Posted

Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…

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