
Meet MEK Users: A Power Hour 4NF
Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want…
Read MoreThinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want…
Read MoreStarted in 2004, Camp NF (originally Camp New Friends) is a condition-specific camp for children with NF (including NF2-SWN and…
Read MoreThis May, NF Midwest, and other NF organizations are coming together to turn awareness into action. We’re turning up the…
Read MoreNF Midwest is back with its Walk4NF events, bringing communities together to raise funds and awareness for neurofibromatosis (NF) and…
Read MoreLearn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from…
Read MoreSamJam Benefit Concert Aims to Reach $100,000 Milestone for NF Research Date: Saturday, April 26, 2025Time: 5:30 PM – LateLocation:…
Read MorePlease refer to the flyer for information. Presented by Alexion Pharmaceuticals, Inc.
Read MoreThis Year’s Focus is TBD! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October 25th. Don’t…
Read MoreJoin us to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. We’ll…
Read MoreRecordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…
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