NF1 Family Symposium at Lurie Children’s Hospital
Topics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP’s, and Social Work in NF.
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Topics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP’s, and Social Work in NF.
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Managing NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
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Join NF Midwest, NF physicians, the NF community, and others in celebrating the work of artist Rachel Mindrup and the…
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I Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…
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Neurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation is a powerful exhibition featuring nine works of printmaking, drawing,…
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NF Midwest is excited to share the Children’s Tumor Foundation’s new resource on the Genetics of Neurofibromatosis! Understanding the genetics…
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Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want…
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Started in 2004, Camp NF (originally Camp New Friends) is a condition-specific camp for children with NF (including NF2-SWN and…
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This May, NF Midwest, and other NF organizations are coming together to turn awareness into action. We’re turning up the…
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NF Midwest is back with its Walk4NF events, bringing communities together to raise funds and awareness for neurofibromatosis (NF) and…
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