Brainy Ridge Camp NF
A 7-day, 6-night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2, and Schwannomatosis. Medical…
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A 7-day, 6-night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2, and Schwannomatosis. Medical…
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Join us as Dr. Jacob Henderson presents a more in-depth look at Koselugo for the treatment of plexiform tumors in…
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A 2026 Update on Pain in NF1:Where We Have Been and Where We Are Going By Andrea Baldwin, CRNP and…
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Listen and learn together, with experts and each other. The morning will include: Professionals attending the event include: Join us…
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NF Midwest advocates will be in Washington, D.C., February 22–24 to urge Senators and Representatives to continue supporting research for…
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NF Midwest Scholarship Applications are now open! This is your sign to kick off the new year by pursuing your…
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Because of Her, It Started. Because of You, It Continues. Dear Friend of NF Midwest, My journey started in 1976…
Read MoreThe Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) Collaborative is an international effort to develop new standardized response criteria for determining treatment response in patients with NF1,…
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Joe Booe, Patient Education Manager from Alexion Pharmaceuticals, will share discovering possibilities for neurofibromatosis type 1 (NF1) plexiform neurofibromas in…
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NF Midwest is excited to share important news for our community, news that brings real hope to people living with…
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