
The NF1 Cognitive Aging Project
Participants 40+ May Earn $40. Florida State University College of Medicine is conducting a study to investigate cognitive patterns and…
Read MoreCheck out past blogs and news!
Participants 40+ May Earn $40. Florida State University College of Medicine is conducting a study to investigate cognitive patterns and…
Read MoreParent’s May Earn $10. Kids 13-17 May Earn $210. Florida State University College of Medicine is conducting a study to…
Read MoreAre you a passionate young adult looking to make a difference? The NF Young Adult Leadership Program is your chance…
Read MoreAre you a passionate young adult looking to make a difference in your community? The NF Young Adult Leadership Program…
Read MoreHelp Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…
Read MoreThe European Commission has granted conditional approval for EZMEKLY® (mirdametinib) to treat symptomatic, inoperable plexiform neurofibromas (PNs) in patients aged…
Read MoreWelcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…
Read MoreManaging NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
Read MoreTopics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP’s, and Social Work in NF.
Read MoreManaging NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
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