Strengthening the NF Community: Thanks to SpringWorks

SpringWorks Sponsorship Brings Hope and Support to the NF Community

We are excited to share some wonderful news — SpringWorks Therapeutics is partnering with NF Midwest to sponsor upcoming in-person and online programs for those affected by neurofibromatosis (NF) and their families.

Expanding Access and Support

Over the next several months and into 2026, this sponsorship will allow NF Midwest to offer more opportunities for patients, caregivers, and families to connect, learn, and find the resources they need. From educational workshops to community gatherings, these programs will ensure that no one has to navigate the NF journey alone.

Why It Matters

Living with NF can present unique challenges that affect health, family life, and daily routines. By supporting programs that provide education and connection, SpringWorks is helping to create spaces where families feel supported, informed, and empowered.

A Stronger Community Together

We are deeply grateful to SpringWorks for their commitment to the NF community. Their support makes it possible for us to continue building a network of care and resources that stretches across our region and beyond.

💙 Thank you, SpringWorks, for walking alongside us in this journey. Together, we’re stronger.

Recent Posts

  • Where Belonging Can Lead: Rachel’s Journey with NF Midwest 

    Rachel was 13 when she first attended Camp NF.  At an age when so much was changing, camp gave her something she deeply needed: the chance to meet other young people who understood life with NF.  “NF camp gave me the opportunity to connect with others who had a shared experience and come to understand... Read More
  • McKenna Had an Idea. A Few Weeks Later, More Than 100 People Showed Up! 

    McKenna Smith had been thinking about doing something for the NF community. She wanted more people to understand NF, and she wanted to raise funds to help individuals and families find care, resources, support, and connection.  Then she saw NF Midwest’s Walk Your Way campaign and sent us a message.  From there, McKenna got to... Read More

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