Meet MEK Users: A Power Hour 4NF
Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want…
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Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want…
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Started in 2004, Camp NF (originally Camp New Friends) is a condition-specific camp for children with NF (including NF2-SWN and…
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This May, NF Midwest, and other NF organizations are coming together to turn awareness into action. We’re turning up the…
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NF Midwest is back with its Walk4NF events, bringing communities together to raise funds and awareness for neurofibromatosis (NF) and…
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Learn about both MEK inhibitors, GOMEKLI and Koselugo, used to treat plexiform neurofibromas in NF1 with Dr. Shawn Damodharan from…
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SamJam Benefit Concert Aims to Reach $100,000 Milestone for NF Research Date: Saturday, April 26, 2025Time: 5:30 PM – LateLocation:…
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Please refer to the flyer for information. Presented by Alexion Pharmaceuticals, Inc.
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The theme this year is being “Be Proactive, Be Informed, Be Heard!“ Join us for an all-day iNFo Fair in…
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Join us to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. We’ll…
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Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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