
February 29th is Rare Disease Day
February 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),…
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February 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),…
Read MoreLegends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…
Read MoreHave you ever noticed faint, light brown patches on your skin? These “café au lait” spots are quite common, but…
Read MoreThank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,…
Read MoreHere is your sign to start the new year working on your goal of continuing post high school education. The…
Read MoreWalk4NF Virtual Challenge Details Get ready for this year’s Virtual Challenge! Plus, NF Midwest is celebrating over 42 years as…
Read MoreDuring the week of February 4-6th NF Midwest along with other NF organizations, advocates, caregivers and those with neurofibromatosis (NF)…
Read MoreDesigned for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing…
Read MoreWalk4NF Naperville Details Get ready for the 23rd Naperville Walk4NF-the largest walk and party in the park for NF in…
Read MoreWalk4NF Indianapolis Details Get ready for the annual Indianapolis Walk4NF! Plus, NF Midwest is celebrating over 42 years as a…
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