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Last week representatives of NF Midwest, along with members of other NF organizations, stormed Capitol Hill in Washington DC asking for support…
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Last week representatives of NF Midwest, along with members of other NF organizations, stormed Capitol Hill in Washington DC asking for support…
Read MoreResearchers at Indiana University are creating a survey on how having NF1 affects people’s health and well-being. This tool will become…
Read MoreFour years ago my granddaughter Aydin was diagnosed with neurofibromatosis or NF. To be perfectly honest, I had no idea…
Read MoreIf you have a child with neurofibromatosis, consider sending them to Camp New Friends. Now is the time to sign…
Read MoreOn February 8th and 9th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read MoreJoin our Monthly Giving Circle and for a limited time you may receive a FREE NF Midwest Neurofibromatosis Fighter T-Shirt!…
Read MoreBig NF news out of Washington, D.C. today! Thanks to your dedicated and passionate outreach – your letters and emails,…
Read MoreThursday and Friday, December 3rd and 4th, were just amazing days for me, NF Midwest and the entire NF Community….
Read MoreThanks so much for everything. A part of me wishes I had still never heard of NF, but since it’s…
Read MoreNF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
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