Meet the Faces of NF Care

Have you seen our new video series called Meet the Faces of NF Care? This series is designed to give you, the NF community, a chance to learn more about NF care and the dedicated providers in your area (Illinois, Indiana, Iowa, Kentucky, Wisconsin, and Missouri).

Through these informative recordings, you’ll gain valuable insights, including:

  • The people behind the scenes: Meet the healthcare professionals who are committed to your well-being.
  • Your first appointment: Learn what to expect during your initial visit with an NF specialist.
  • Your medical team: Understand the roles of each healthcare professional involved in your care.
  • Answers to your questions: Get expert answers to questions submitted directly by NF Midwest members like you!

Whether you’re newly diagnosed or have been living with NF for a long time, Meet the Faces of NF Care is a fantastic resource for anyone seeking information and support in their journey with NF.

Haven’t seen a recording from your area yet? Don’t worry! New recordings are being added as they’re completed, so stay tuned.

Ready to watch? Head over to the NF Midwest YouTube channel: Faces of NF Care Intro

If you would like to submit a question for our next recording, please contact us.

Recent Posts

  • Skylar's Story: Strength, Courage & a New Beginning 

    Some journeys begin before a child can even walk. For Skylar, hers started at just 5 months old, when she broke her left leg. It would be the first of many chapters in a story defined not by hardship, but by an extraordinary spirit that refused to be held back.  A week after that initial... Read More
  • Building Something Bigger: Christina’s Commitment to the Columbia Walk4NF

    In Columbia, Missouri, the Walk4NF has become something families count on each year. It’s where people show up, find each other, and realize they’re not the only ones navigating life with NF.  That kind of connection didn’t always exist for Christina.  Neurofibromatosis has been part of her family for generations. Her grandmother had it. Her father had it, along with several... Read More

Responses

Respond

Your email address will not be published. Required fields are marked *