New Guidelines for the Care of Adults with NF1
Great news! A new, detailed clinical practice guideline has been made available on the care of adults with neurofibromatosis type 1. This was written to help physicians treat their patients with NF1 and is a great resource to share with your doctor. It’s a wonderful piece published by the The American College of Medical Genetics and Genomics (ACMG) and written collaboratively by several NF experts.
We’d like to thank ACMG and the NF experts (Douglas R. Stewart, MD, Bruce R. Korf, MD, Ph.D, Katherine L. Nathanson, MD,
David A. Stevenson, MD and Kaleb Yohay, MD) for undertaking this momentous task!
The article is available here.
Care Guidelines for Adults with NF1
Care Guidelines for Children with NF1
Trying to get the Care Guidelines For Adults With NF1
I filled out information on another page ending up on this page. I do have NF1 I was diagnosed back in 1972. it run in my family
Roger, sorry this post didn’t come through to us earlier. Were you able to get the Care Guidelines?