Strengthening the NF Community: Thanks to SpringWorks - Neurofibromatosis Midwest

43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Home
News/Blog
General
Strengthening the NF Community: Thanks to SpringWorks

Strengthening the NF Community: Thanks to SpringWorks

Posted By Ted Woodlock | On September 10th, 2025

SpringWorks Sponsorship Brings Hope and Support to the NF Community

We are excited to share some wonderful news — SpringWorks Therapeutics is partnering with NF Midwest to sponsor upcoming in-person and online programs for those affected by neurofibromatosis (NF) and their families.

Expanding Access and Support

Over the next several months and into 2026, this sponsorship will allow NF Midwest to offer more opportunities for patients, caregivers, and families to connect, learn, and find the resources they need. From educational workshops to community gatherings, these programs will ensure that no one has to navigate the NF journey alone.

Why It Matters

Living with NF can present unique challenges that affect health, family life, and daily routines. By supporting programs that provide education and connection, SpringWorks is helping to create spaces where families feel supported, informed, and empowered.

A Stronger Community Together

We are deeply grateful to SpringWorks for their commitment to the NF community. Their support makes it possible for us to continue building a network of care and resources that stretches across our region and beyond.

💙 Thank you, SpringWorks, for walking alongside us in this journey. Together, we’re stronger.

Leave a Reply Cancel reply

<< View More

Great Non Profits Badge

Candid Gold Seal of Transparency 2025

Donate

© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.