Golf Charity Open
We are excited to have our inaugural golf fundraising event hosted by Ravinia Green Country Club on Monday, September 9,…
Read MoreWe are excited to have our inaugural golf fundraising event hosted by Ravinia Green Country Club on Monday, September 9,…
Read MoreMassachusetts General Hospital is looking for adults with NF1, NF2, or Schwannomatosis to participate in a research study to enhance…
Read MoreMy name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…
Read MoreNF Collective Launches New Website to Connect NF Patients with Doctors The NF Collective, a group of organizations dedicated to…
Read MoreI joined the Army at 19 years old. I did all the training and arrived at my duty station. In…
Read MoreMy sixteen-year-old son began getting café au lait spots at two months old. Our pediatrician at the time gave us…
Read MoreMy STRONG and POSITIVE Sarah was born with NF1. Sarah has had 12 surgeries, 14 chemo sessions, 58 MRI’s, and…
Read MoreWe had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
Read MoreMy name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
Read MoreI was diagnosed with neurofibromatosis type one at birth. It was caused by spontaneous mutation. I was born with glaucoma…
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