Simple articles about various complications of NF.
Our be iNFormed articles are about the various complications of NF and are written for normal (ie. not brainiacs). They are meant to provide basic information and are not meant to substitute for medical care. We are frequently adding articles. Please, let us know if you are looking for something in particular.
By Nicole Sevison RN, Haluk Altiok MD
By Scott Hunter, PhD and James Tonsgard, MD
NF Midwest w/BC NF Foundation | 2012
By Cynthia Hingtgen, MD, PhD
What should you know? People with neurofibromatosis type 1 (NF1) can have many…
By Staci Martin Peron, PhD and Andrea Baldwin, CRNP
By Heather Radtke, MS, CGC
NF Midwest | 2015
By Jason Marker, MD
We recently invited Dr. Jason Marker, a primary care physician, to share his…
Department of Communication Sciences and Disorders, California State University, Sacramento By Kimberly Marrs, B.S., & Heather Thompson, Ph.D., CCC-SLP
By Robert Listernick, MD
By Multiple Contributors
Leading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes…
By James Tonsgard, MD
By James Tonsgard, MD, University of Chicago
By Andrea Gross, MD
By Allison Goetsch, MS, CGC
Johns Hopkins University
By Amanda Bergner, MS CGC
People who themselves have been diagnosed with NF1, NF2 and schwannomatosis, or who…
National Cancer Institute
By Sharon Reynolds
American College of Medical Genetics and Genomics | 2018
NF Midwest By Ram Meyyappan
American Academy of Pediatrics | 2019
NF Midwest is a wonderful resource for us right here. They raise funds for local research clinics. They provide excellent NF informational packets and web based educational programs so people with NF in their lives can learn about the newest medical information and research discoveries about NF. They organize many fun events throughout our area for adults, children, and families to enjoy, to meet others, to share their story, and find support through friendships made. NF Midwest, as a smaller more local foundation, can provide support in a more personal way that is also very important to our well-being and hope.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.