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Be iNFormed Database

Articles about various complications of NF.

NF Midwest Database

Our be iNFormed articles are about the various complications of NF and are written for normal (ie. not brainiacs). They are meant to provide basic information and are not meant to substitute for medical care. We are frequently adding articles. Please, let us know if you are looking for something in particular.

Be iNFormed PDFs - Material created or provided by NF Midwest

NF1 Information for Medical Professionals
Take this to your doctors!

Care Guidelines for Adults with NF Type 1
American College of Medical Genetics and Genomics 2018

Neurofibromas (What They are and Types of)

by James Tonsgard, MD

Optic Pathway Tumors in Neurofibromatosis Type 1
by Robert Listernick, MD

Seizures in NF1
by Nikolas Mata-Machado. MD

NF1 Gene Deletion
by Heather Radtke, MS, CGC

Vascular Disease in Neurofibromatosis Type 1
by Cynthia Hingtgen, MD, PhD

Pain in Neurofibromatosis 1
by Staci Martin Peron, PhD and Andrea Baldwin, CRNP

Insurance Coverage for Neurofibroma Removal
by NF Midwest

Procedure Codes for Removing a High Quantity of Neurofibromas
by NF Midwest

Medical Imaging for NF1: Radiation Exposure
by Allison Goetsch, MS, CGC

Scoliosis in NF1
by Christopher Moertel, MD Nov. 2017

Autism Spectrum Disorder Symptomatology in Children with NF1
By Bonnie Klein-Tasman, Ph.D., & Christy Casnar, Ph.D Feb 2018


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