Simple articles about various complications of NF.
Our be iNFormed articles are about the various complications of NF and are written for normal (ie. not brainiacs). They are meant to provide basic information and are not meant to substitute for medical care. We are frequently adding articles. Please, let us know if you are looking for something in particular.
By Nicole Sevison RN, Haluk Altiok MD
By Scott Hunter, PhD and James Tonsgard, MD
NF Midwest w/BC NF Foundation | 2012
By Cynthia Hingtgen, MD, PhD
What should you know? People with neurofibromatosis type 1 (NF1) can have many…
By Staci Martin Peron, PhD and Andrea Baldwin, CRNP
By Heather Radtke, MS, CGC
NF Midwest | 2015
By Jason Marker, MD
We recently invited Dr. Jason Marker, a primary care physician, to share his…
Department of Communication Sciences and Disorders, California State University, Sacramento By Kimberly Marrs, B.S., & Heather Thompson, Ph.D., CCC-SLP
By Robert Listernick, MD
By Multiple Contributors
Leading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes…
By James Tonsgard, MD
By James Tonsgard, MD, University of Chicago
By Andrea Gross, MD
By Allison Goetsch, MS, CGC
Johns Hopkins University
By Amanda Bergner, MS CGC
People who themselves have been diagnosed with NF1, NF2 and schwannomatosis, or who…
NF Midwest By Ram Meyyappan
American Academy of Pediatrics | 2019
American College of Medical Genetics and Genomics | 2018
I just had to commend you on an amazing event yesterday. I have to admit, this whole fundraising experience has been extremely emotional for me. I've been focusing on NF and thereby losing sleep worrying about [my daughter's] future way more than I'd like to. To be honest, I was a little worried about attending the walk and getting more upset. I actually had the best time. It was such a fun, positive event. I felt like everyone had so much fun and it was a great thank you to all of our supporters. You all do such incredible work. And the award for top-raising team...I was super excited to win the title and the plaque, I had no idea we'd get a bag full of awesome loot! Thanks so much for everything. A part of me wishes I had still never heard of NF, but since it's in my life to stay, I'm so glad that all of you are too. We are going on vacation next week and I'm taking the rest of the month off from NF, but later in the summer I have a group of amazing moms in my community ready to enlist and help me plan a local fundraiser.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.