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Be iNFormed Database

Articles about various complications of NF.

NF Midwest Database

Our be iNFormed articles are about the various complications of NF and are written for normal (ie. not brainiacs). They are meant to provide basic information and are not meant to substitute for medical care. We are frequently adding articles. Please, let us know if you are looking for something in particular.

Be iNFormed PDFs - Material created by NF Midwest

NF1 Information for Medical Professionals
Take this to your doctors!

Neurofibromas (What They are and Types of)
by James Tonsgard, MD

Optic Pathway Tumors in Neurofibromatosis Type 1
by Robert Listernick, MD

Seizures in NF1
by Nikolas Mata-Machado. MD

NF1 Gene Deletion
by Heather Radtke, MS, CGC

Vascular Disease in Neurofibromatosis Type 1
by Cynthia Hingtgen, MD, PhD

Pain in Neurofibromatosis 1
by Staci Martin Peron, PhD and Andrea Baldwin, CRNP

Insurance Coverage for Neurofibroma Removal
by NF Midwest

Procedure Codes for Removing a High Quantity of Neurofibromas
by NF Midwes

NF1 Information for Teachers
by NF Midwest w/BC NF Foundation

Learning Problems in Neurofibromatosis-1
by Scott Hunter, PhD and James Tonsgard, MD

Comprehensive Neuropsychological Evaluations for Children with NF1
by Jill Isenberg, Ph.D.

Reproductive Options for People with NF1, NF2 and Schwannomatosis
by Amanda Bergner, MS CGC

Volumetric Measurement in Neurofibromatosis
by Diana Haberkamp, reviewed by Eva Dombi,  MD

What is Schwannomatosis
by NF Midwest

Applying for Disability Benefits with Neurofibromatosis
by Ram Meyyappan

Communication Skills of Individuals with NF1
by Heather Thompson, PhD CCC-SLP;

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