Local Groups - Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
View our upcoming events and join us in making NF Midwest great!
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Find Local Support! Step Up For The Cause!

Wonderful volunteers have stepped up to support the NF community in several areas that NF Midwest serves. These volunteers are NF Midwest liaisons. They may be our main connection to a local clinic. They also may help us to put together educational, awareness and fundraising opportunities. Most importantly, they offer support to people locally.

Local community only succeeds if there is a strong local leader. It’s a tough job. If you’d like to help let us know. If leaderships not for you, we’d be happy to connect you to people in the community.

The Indianapolis NF Midwest community is growing and looking to increase community, education, and care. We have great people and great doctors in the area. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator. We’d love to connect you!

The Madison area has been holding a Walk4NF for a LONG time. This has created a great community. However, need people to step forward to add on to that wonderful community. They’d love to see more events. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator. We’d love to connect you!

We have volunteers in Central Missouri who hold a Walk4NF every year in Columbia, MO. We’d love to grow more community and support in the area. If you’d like to learn more or show your NF in the Show Me state. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator. We’d love to connect you!

Kentucky needs YOU! There are many people in Kentucky with neurofibromatosis or schwannomatosis. We’re ready to build help build it up to create local support, education, and most importantly CARE. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator. We’d love to work with you to increase community in Kentucky!

We don’t currently have an active group in Kentucky. If you’d like to help us build local community and care, we’d love to hear from you and discuss your ideas. No One Fights Alone! Give us a call at 630-945-3562 or email our Care and Outreach Coordinator.

We have a large Walk4NF in Illinois, an annual iNFo Fair, and a large community. There is the potential for creating events to meet others or joining a committee. Also, we’d love to build up community in Central and Southern Illinois. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator if you’d like to help or want to be connected to others.