Wonderful volunteers have stepped up to support the NF community in several areas that NF Midwest serves. These volunteers are NF Midwest liaisons. They may be our main connection to a local clinic. They also may help us to put together educational, awareness and fundraising opportunities. Most importantly, they offer support to people locally.
Local community only succeeds if there is a strong local leader. It’s a tough job. If you’d like to help let us know. If leaderships not for you, we’d be happy to connect you to people in the community.
The Indianapolis NF Midwest community is growing and looking to increase community, education, and care. We have great people and great doctors in the area. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator. We’d love to connect you!
The Madison area has been holding a Walk4NF for a LONG time. This has created a great community. However, need people to step forward to add on to that wonderful community. They’d love to see more events. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator. We’d love to connect you!
We have volunteers in Central Missouri who hold a Walk4NF every year in Columbia, MO. We’d love to grow more community and support in the area. If you’d like to learn more or show your NF in the Show Me state. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator. We’d love to connect you!
Kentucky needs YOU! There are many people in Kentucky with neurofibromatosis or schwannomatosis. We’re ready to build help build it up to create local support, education, and most importantly CARE. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator. We’d love to work with you to increase community in Kentucky!
We don’t currently have an active group in Kentucky. If you’d like to help us build local community and care, we’d love to hear from you and discuss your ideas. No One Fights Alone! Give us a call at 630-945-3562 or email our Care and Outreach Coordinator.
We have a large Walk4NF in Illinois, an annual iNFo Fair, and a large community. There is the potential for creating events to meet others or joining a committee. Also, we’d love to build up community in Central and Southern Illinois. Give us a call at 630-945-3562 or email our Care and Outreach Coordinator if you’d like to help or want to be connected to others.
It's been the one place I truly can find help and hope for a better future.. This place is more like family than anything else.. they truly want to find a cure and unlike someplace (aka goodwill) the profits go where they need to be.. (like goodwill head people)... these people real care and out reach to help find the right sources a person need... we need more support and more help and need the recognition like any other non profit groups.. aka the cancer society . . Because even this diease has cancer among the people my mom and identical twin died from brain cancer.. NFL needs more donations to function and move forward so they can help more people.. I cannot say enough about the help and hope given here...
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.