Our NF Midwest community is working together to improve the lives of people with NF. We have great group leaders in areas throughout the Midwest.
Wonderful volunteers have stepped up to support the NF community in several areas that NF Midwest serves. These volunteers are NF Midwest liaisons. They may be our main connection to a local clinic. They also may help us to put together educational, awareness and fundraising opportunities. Most importantly, they offer support to people locally.
This organization has been instrumental in spreading awareness and raising funds for those in the Midwest that suffer from Neurofibromatosis. They truly care about finding a cure. They are supportive not only to those that have NF, but their families as well. It is where my family first turned to when I was little to get the information they so greatly needed.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.