Our NF Midwest community is working together to improve the lives of people with NF. We have great group leaders in areas throughout the Midwest.
Wonderful volunteers have stepped up to support the NF community in several areas that NF Midwest serves. These volunteers are NF Midwest liaisons. They may be our main connection to a local clinic. They also may help us to put together educational, awareness and fundraising opportunities. Most importantly, they offer support to people locally.
NF Midwest is an amazing group full of support, information and most importantly, acceptance and understanding. They do so much to promote awareness about Neurofibromatosis, and provide support to families that don't know what to do, or where to go when they are given the diagnosis.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.