Recording – 10 Things Everyone Should Know About NF1
The NF Network, NF Midwest’s national affiliate, presented a webinar about the 10 things everyone should know about neurofibromatosis type…
Read More
Check out past blogs and news!
The NF Network, NF Midwest’s national affiliate, presented a webinar about the 10 things everyone should know about neurofibromatosis type…
Read More
In March 2012 NF Network, presented a webinar about school issues in neurofibromatosis type 1. The speaker was Dr. James…
Read MoreFormer NF Midwest board member Dave Evans recently competed in a Toastmaster competition and came in second out of 100…
Read More
Forty-four extraordinary individuals from around the world have united to share their journeys with Neurofibromatosis Type 2 (NF2). NF2: Our Journeys is…
Read More
Check out a recording of the webinar on When to Worry About NF1 that was presented by the Neurofibromatosis Network on…
Read More
Pain in NF1 One of most common challenges for individuals with NF1 is living with chronic pain. By definition, chronic…
Read MoreDear Neurofibromatosis Supporter, It’s been eighteen years since I was sitting alone at my home in Singapore, talking by phone…
Read MoreSee what it’s all about. Watch video of the 2012 Great Steps 4NF walk in Naperville, IL. Started in 2001,…
Read More
In March 2013 NF Network hosted a webinar presented by Susan Fitzsimonds, the author of “The Hero in Me,” which…
Read More
REGISTER NOW Join the NF community and participate in a Great Steps for Neurofibromatosis walk. The Great Steps 4NF Walks…
Read More
© 2025 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.