If you have a story to tell, speak up! The world needs to know the struggles of those with NF if we want them to CARE!
If you have a story to tell, we want to hear it! We’re here to make sure the voice of the NF Community is heard. Our strength comes from real stories by real people like you.
Send us your story below!
NF Midwest is an amazing group full of support, information and most importantly, acceptance and understanding. They do so much to promote awareness about Neurofibromatosis, and provide support to families that don't know what to do, or where to go when they are given the diagnosis.
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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