If you have a story to tell, speak up! The world needs to know the struggles of those with NF if we want them to CARE!
If you have a story to tell, we want to hear it! We’re here to make sure the voice of the NF Community is heard. Our strength comes from real stories by real people like you.
Send us your story below!
Thank you very much [for the packet]! My 6 year old son was diagnosed with NF last fall. My 8 month old will have his first appointment at the NF clinic in July. We are very excited about the walk. We just finished a T-shirt fundraiser. I had never even heard of NF before he was diagnosed, so NF Midwest has been a wonderful resource for us. Thank you for all that you guys do!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
Chicago Web Design by Idea Marketing Group