If you have a story to tell, speak up! The world needs to know the struggles of those with NF if we want them to CARE!
If you have a story to tell, we want to hear it! We’re here to make sure the voice of the NF Community is heard. Our strength comes from real stories by real people like you.
Send us your story below!
This organization has been instrumental in spreading awareness and raising funds for those in the Midwest that suffer from Neurofibromatosis. They truly care about finding a cure. They are supportive not only to those that have NF, but their families as well. It is where my family first turned to when I was little to get the information they so greatly needed.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.