If you have a story to tell, speak up! The world needs to know the struggles of those with NF if we want them to CARE!
If you have a story to tell, we want to hear it! We’re here to make sure the voice of the NF Community is heard. Our strength comes from real stories by real people like you.
Send us your story below!
NF Midwest has proven to be a great resource and support for us as we make our way through this maze. They provided valuable information that we were able to share with our own families and friends. They were instrumental in helping to educate the teachers at [the] Elementary School where [my granddaughter] would be attending. When we held our bowling event last Saturday the local chapter was in attendance to share information and lend their support.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.