If you have a story to tell, we want to hear it! We’re here to make sure the voice of the NF Community is heard. Our strength comes from real stories by real people like you.
Send us your story below!
I received the packet yesterday. Thanks so much for sending it! I really enjoyed the information you guys sent in regard to learning problems, etc. As someone who works in that field, I would really like to complement you guys on the information provided. When it comes to seeking help at school and all, you guys were spot on! Thanks again.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.