Volunteer to join a committee, the board, work an event, create an event…we have lots of opportunities! Let us know what you like to do!
NF Midwest and the neurofibromatosis cause needs you!
Everything you do, big or small, will move the neurofibromatosis cause forward.
im in kentucky , when they said my son tested positive for nf1 i was lost and didnt know where to turn , had very little info on what to do next or who to even talk to on how to help my child . they sent me an info kit that was very well organized and called me without asking to guide me and just give me pointers etc , thank you so much
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.