Volunteer to join a committee, the board, work an event, create an event…we have lots of opportunities! Let us know what you like to do!
NF Midwest and the neurofibromatosis cause needs you!
Everything you do, big or small, will move the neurofibromatosis cause forward.
We’re always looking for help at our events or for people to assist our “do it yourselfers” who are holding a third party event. You may volunteer for the actual event or if you are especially energetic and interested in making a difference we’d love to have you on a planning committee.
Check out our events to see what might interest you and contact us about helping at one or joining a committee.
If you don’t see a volunteer opportunity that appeals to you then think about creating your own volunteer position by holding your own event to raise funds and awareness. Check out our page on holding a Third Party (DIY) event.
Join a Local Group if you want to help structure programs and activities in your area to help us fulfill our mission. You will meet and work with local families and individuals who also share an interest in NF.
If you don’t see a group in your area and want to start one please contact us.
The Dream Team is for people who are able to volunteer for NF Midwest on a deeper level and want to dedicate their time and talent. The Dream Team holds regular meetings (usually online) and members are update frequently about the needs of the organization.
Fill out an application for the Dream Team today!
Help set the direction of NF Midwest and drive its execution by joining the Board of Directors.
The board meets the third Monday of the month at 5:30 pm in St. Charles, IL., but we can accommodate people through video or phone conferencing if they are unable to attend in person.
Check out our current board and think about joining them!
Check out our Office Wish List for items and volunteers that we may be looking for. This list isn’t comprehensive and it is always changing. We can use just about any time or talent you have.
Even if you can’t supply what we are looking for, you can certainly volunteer to help find it!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.