Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
View our upcoming events and join us in making NF Midwest great!
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Spending Responsibly

We have loved ones with NF. Every dollar is a precious to us as it is to you!

Every Dollar Matters

NF Midwest is dedicated to improving the lives of people with NF through C.A.R.E.

To fulfill this mission, NF Midwest supports regional Clinics, raises Awareness, funds Research and provides Education and Support. NF Midwest provides programs and services designed to help people with NF and their families live their best lives while coping with neurofibromatosis.

guidestar silver We meet or exceed the standards set by all groups that monitor the nonprofit sector and are proud of how we ensure donor funds are put to the best possible use in achieving our mission. Currently we are a Guidestar Exchange Silver Participant.

Our EIN is 22-2580173.

As a nonprofit organization, Neurofibromatosis Midwest relies on charitable donations to fund our research programs and patient services. Your support is invested wisely.

Financials

NF Midwest is a nonprofit organization under section 501(c)(3) of the Internal Revenue Code. Donations are tax deductible. Books and records are audited annually in accordance with generally accepted accounting standards. Click to see NF Midwest’s most recent three 990’s and Financial Statements.

FULL FINANCIALS

How Funds are Used

People Are Talking

I just wanted...tell you how fantastic the conference was on Saturday. Every speaker was informative and interesting and I got tons of information and learned so much from every speaker. It looked like you had a great turn out. Thank you to all your staff and to you for putting on such a great day.

- Symposium Comments from Angela

Find NF Care

Get the best care! Find an experienced NF doctor/clinic in the NF Midwest region.

Be iNFormed

Knowledge is power! Learn and understand as much as possible about neurofibromatosis.

Community Support

Don’t fight alone! Meet others in the NF community to learn and share experiences.

Donate

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.