We have loved ones with NF. Every dollar is a precious to us as it is to you!
NF Midwest is dedicated to improving the lives of people with NF through C.A.R.E.
To fulfill this mission, NF Midwest supports regional Clinics, raises Awareness, funds Research and provides Education and Support. NF Midwest provides programs and services designed to help people with NF and their families live their best lives while coping with neurofibromatosis.
We meet or exceed the standards set by all groups that monitor the nonprofit sector and are proud of how we ensure donor funds are put to the best possible use in achieving our mission. Currently we are a Guidestar Exchange Silver Participant.
Our EIN is 22-2580173.
As a nonprofit organization, Neurofibromatosis Midwest relies on charitable donations to fund our research programs and patient services. Your support is invested wisely.
NF Midwest is a nonprofit organization under section 501(c)(3) of the Internal Revenue Code. Donations are tax deductible. Books and records are audited annually in accordance with generally accepted accounting standards. Click to see NF Midwest’s most recent three 990’s and Financial Statements.
Thank YOU for all that you do for people with NF and their families! It brings tears to my eyes to see how much was raised for this cause. My brother had NF which turned cancerous and he passed away February 10, 2011 after a not-so-easy life with NF. My sister and father also struggled with this disease, then cancer and passed away in 1991 and 2008 respectively. This was our first NF Walk and we look forward to next year's. We were impressed with the organization of the walk, the DJ, the food, the prize baskets, the facilities and of course all of the care that went into it. My remaining sister and I, and our families, are determined to help out in any way to help cure this disease or assist other families who have NF in their lives. We look forward to raising more funds next year and dressing up our team! Our goal as a team is to raise a lot more money next year!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.