42 Years of Care and Ensuring No One Fights Alone!

Spending Responsibly

We have loved ones with NF. Every dollar is a precious to us as it is to you!

Every Dollar Matters

NF Midwest is dedicated to improving the lives of people with NF through C.A.R.E.

To fulfill this mission, NF Midwest supports regional Clinics, raises Awareness, funds Research and provides Education and Support. NF Midwest provides programs and services designed to help people with NF and their families live their best lives while coping with neurofibromatosis.

guidestar silverWe meet or exceed the standards set by all groups that monitor the nonprofit sector and are proud of how we ensure donor funds are put to the best possible use in achieving our mission. Currently we are a Guidestar Exchange Silver Participant.

Our EIN is 22-2580173.

As a nonprofit organization, Neurofibromatosis Midwest relies on charitable donations to fund our research programs and patient services. Your support is invested wisely.


NF Midwest is a nonprofit organization under section 501(c)(3) of the Internal Revenue Code. Donations are tax deductible. Books and records are audited annually in accordance with generally accepted accounting standards. Click to see NF Midwest’s most recent three 990’s and Financial Statements.


How Funds are Used

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