We are on a mission to raise the public visibility and awareness of the neurofibromatoses.
For NF Midwest raising awareness means educating the public and helping them to care.
Most people don’t know much about neurofibromatosis (NF). Those that do don’t always understand the incredible challenges of NF and the needs of people with NF.
One step towards towards easing the challenges of those with neurofibromaosis and schwannomatosis is to increase the understanding and support from the public. For that the public needs to know that neurofibromatosis exists, understand how awful it can be, know how they can help and want to make a difference.
NF Midwest staff, supporters and patients are often visible at professional and public events. These may be medical meetings, local festivals, other non-profit events and more.
We also reach out to the media to publicize events, news or stories.
NF Midwest has developed material for people to hand out to the public. This includes brochures, business cards and special cards for people who are so affected that they may find someone starting at them,
We also have shirts, stickers, wristbands and more.Awareness Store
NF Midwest shares personal stories through the media, our website and social media. We also provide the means for people to share their stories with others and develop social media posts for sharing.
Thank YOU for all that you do for people with NF and their families! It brings tears to my eyes to see how much was raised for this cause. My brother had NF which turned cancerous and he passed away February 10, 2011 after a not-so-easy life with NF. My sister and father also struggled with this disease, then cancer and passed away in 1991 and 2008 respectively. This was our first NF Walk and we look forward to next year's. We were impressed with the organization of the walk, the DJ, the food, the prize baskets, the facilities and of course all of the care that went into it.My remaining sister and I, and our families, are determined to help out in any way to help cure this disease or assist other families who have NF in their lives. We look forward to raising more funds next year and dressing up our team! Our goal as a team is to raise a lot more money next year!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.