We are on a mission to raise the public visibility and awareness of the neurofibromatoses.
For NF Midwest raising awareness means educating the public and helping them to care.
Most people don’t know much about neurofibromatosis (NF). Those that do don’t always understand the incredible challenges of NF and the needs of people with NF.
One step towards towards easing the challenges of those with neurofibromaosis and schwannomatosis is to increase the understanding and support from the public. For that the public needs to know that neurofibromatosis exists, understand how awful it can be, know how they can help and want to make a difference.
NF Midwest staff, supporters and patients are often visible at professional and public events. These may be medical meetings, local festivals, other non-profit events and more.
We also reach out to the media to publicize events, news or stories.
NF Midwest has developed material for people to hand out to the public. This includes brochures, business cards and special cards for people who are so affected that they may find someone starting at them,
We also have shirts, stickers, wristbands and more.Awareness Store
NF Midwest shares personal stories through the media, our website and social media. We also provide the means for people to share their stories with others and develop social media posts for sharing.
There are a lot of big corporate charities out there that talk about how much they help people, but when we were looking for answers we did not get the help from them. It was NF Midwest that helped us. So it is important to me to get the word out about NF and NF MIdwest so that no other family has to feel as alone as we were when we were searching for answers. WHY SHOULD YOU DONATE TO NF MIDWEST INSTEAD OF THE OTHER GUYS???? To me the answer is simple. They care! Sometimes in life companies or charities get so big that they forget about why they are doing anything to begin with, they forget about the people they are suppose to help. Nf Midwest is NOT this way. They are there for those affected by NF and for their families. Sometimes in life bigger is not better. Our family likes to say that "NF Midwest is Small enough to care...Big enough to make a difference" And I am telling you that my family and others I know in my area that means a lot more then we could say. So please consider helping us in our NF cause and donate to this walk and NF Midwest!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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