We are on a mission to raise the public visibility and awareness of the neurofibromatoses.
For NF Midwest raising awareness means educating the public and helping them to care.
Most people don’t know much about neurofibromatosis (NF). Those that do don’t always understand the incredible challenges of NF and the needs of people with NF.
One step towards towards easing the challenges of those with neurofibromaosis and schwannomatosis is to increase the understanding and support from the public. For that the public needs to know that neurofibromatosis exists, understand how awful it can be, know how they can help and want to make a difference.
NF Midwest staff, supporters and patients are often visible at professional and public events. These may be medical meetings, local festivals, other non-profit events and more.
We also reach out to the media to publicize events, news or stories.
NF Midwest has developed material for people to hand out to the public. This includes brochures, business cards and special cards for people who are so affected that they may find someone starting at them,
We also have shirts, stickers, wristbands and more.Awareness Store
NF Midwest shares personal stories through the media, our website and social media. We also provide the means for people to share their stories with others and develop social media posts for sharing.
NF Midwest has proven to be a great resource and support for us as we make our way through this maze. They provided valuable information that we were able to share with our own families and friends. They were instrumental in helping to educate the teachers at [the] Elementary School where [my granddaughter] would be attending. When we held our bowling event last Saturday the local chapter was in attendance to share information and lend their support.
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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