Wishing for a future CURE and better CARE now.
The Dream Team is for people who have a great interest in supporting the mission of NF Midwest. Dream Team members receive frequent emails regarding the organization needs and are invited to bi-monthly meetings to discuss the programs of NF Midwest and the overall needs of our community. We are looking for those committed to volunteering their time and skills in different ways to help make an impact.
There are jobs big and small and a niche for everyone who really wants to help, but we are looking for individuals who have the dedication to participate on a regular basis and who are able to respond to communications in a timely manner.
If this sounds like something you may want to participate in, please fill out the form below to express your level of interest, availability and what life and professional skills your could add to the team.
I recently learned I have NF1 at the age of 29. Iam blown away with how fast these tumors are growing and haven't got a clue how to start, where to begin , or if I even want to know anymore [about] this . My heart is broken.... I took pride in my appearance and being a young female it's hard to explain to anyone that these are not warts or STDs. I just need help with excepting the reality of my condition, so thank you from the bottom of my heart for reminding me I'm not alone and giving information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions then I began with. So once again THANK YOU FOR CARING.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.