To move our knowledge of NF forward many people are needed to participate in research.
There are many ways to participate in neurofibromatosis research. Some may be more invasive such as a clinical trial testing a medication. Some may simply involve answering questions or letting a researcher examine you and follow your case. Some research may provide the benefit of extra care and expertise and may provide vital testing such as MRIs at no cost to the patient. All research advances our understanding of neurofibromatosis to lead to better treatments, more knowledge of how a patient may be affected, and to an eventual cure.
How can I participate in research?
Why should I participate in research?
There are a lot of big corporate charities out there that talk about how much they help people, but when we were looking for answers we did not get the help from them. It was NF Midwest that helped us. So it is important to me to get the word out about NF and NF MIdwest so that no other family has to feel as alone as we were when we were searching for answers. WHY SHOULD YOU DONATE TO NF MIDWEST INSTEAD OF THE OTHER GUYS???? To me the answer is simple. They care! Sometimes in life companies or charities get so big that they forget about why they are doing anything to begin with, they forget about the people they are suppose to help. Nf Midwest is NOT this way. They are there for those affected by NF and for their families. Sometimes in life bigger is not better. Our family likes to say that "NF Midwest is Small enough to care...Big enough to make a difference" And I am telling you that my family and others I know in my area that means a lot more then we could say. So please consider helping us in our NF cause and donate to this walk and NF Midwest!
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.