To move our knowledge of NF forward many people are needed to participate in research.
There are many ways to participate in neurofibromatosis research. Some may be more invasive such as a clinical trial testing a medication. Some may simply involve answering questions or letting a researcher examine you and follow your case. Some research may provide the benefit of extra care and expertise and may provide vital testing such as MRIs at no cost to the patient. All research advances our understanding of neurofibromatosis to lead to better treatments, more knowledge of how a patient may be affected, and to an eventual cure.
How can I participate in research?
Why should I participate in research?
Thank you so much for the article. I really appreciate both the call reaching out and the article about Legius. I have been so impressed with the friendliness and helpfulness of everyone I've spoken with at NF Midwest. As you know, the unknown before and after a diagnosis can be scary. Thanks for wanting to help our family through it.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.