To move our knowledge of NF forward many people are needed to participate in research.
There are many ways to participate in neurofibromatosis research. Some may be more invasive such as a clinical trial testing a medication. Some may simply involve answering questions or letting a researcher examine you and follow your case. Some research may provide the benefit of extra care and expertise and may provide vital testing such as MRIs at no cost to the patient. All research advances our understanding of neurofibromatosis to lead to better treatments, more knowledge of how a patient may be affected, and to an eventual cure.
How can I participate in research?
Why should I participate in research?
..with the financial support of this scholarship, and the boost of confidence, I am passing the courses I have already completed with success. This is HUGE for me because I am not only completing my life goals, but I am proving to those who have always said I could not do it, that there [are] no limits to the things you do in life. It may take me longer than most people to complete, but that doesn't not mean that I will not complete it.
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.