To move our knowledge of NF forward many people are needed to participate in research.
There are many ways to participate in neurofibromatosis research. Some may be more invasive such as a clinical trial testing a medication. Some may simply involve answering questions or letting a researcher examine you and follow your case. Some research may provide the benefit of extra care and expertise and may provide vital testing such as MRIs at no cost to the patient. All research advances our understanding of neurofibromatosis to lead to better treatments, more knowledge of how a patient may be affected, and to an eventual cure.
How can I participate in research?
Why should I participate in research?
Thanks again for directing the annual NF symposium. Your hard work & dedication to the cause is really appreciated. I stayed to the end and participated in the Lessons Learned/Focus Group. I am So glad I did. I learned so much & met amazing people who want to help my wife with her struggles w/ Schwannomatosis. All of this wouldn't be possible without dedicated people like yourself who give so much to the cause.
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