Celebrating 35 Years

NF Midwest News

Check out past blogs and news!

NF Midwest News/Blog

Janna – A Face of NF

Our daughter Janna was diagnosed with neurofibromatosis type 1 when she was five months old. Doctors tell us that it…

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Young Adult Leadership Program

Because the neurofibromatosis cause needs New Fighters and young iNFluencers! See photos This January I had the extreme privilege of…

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Ify – A Face of NF

My husband and I had never heard of NF1 until May 2015 when our daughter, Ifunanya or Ify (pronounced “eff-ee”),…

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