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NF Midwest News

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NF Midwest News/Blog

CTF Unveils New Genetics of NF Page

NF Midwest is excited to share the Children’s Tumor Foundation’s new resource on the Genetics of Neurofibromatosis! Understanding the genetics…

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iNFo Fair Recordings Posted

Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…

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My NF Guide Study

Guide If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the…

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Meet MEK Users: A Power Hour 4NF

Thinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want…

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