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NF Midwest News

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NF Midwest News/Blog

Supporting Well Siblings

NF Midwest is very excited to add a topic that has been requested in the past, but never touched upon…though…

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Sam – A Face of NF

Sam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…

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Levi – A Face of NF

Levi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…

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2018 Scholarship Recipients

Neurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth…

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Tori – A Face of NF

I inherited NF1 from my father. I was diagnosed shortly after my birth. The doctor noticed that I had flat,…

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