
NF1-TED Study Needs Participants!
I Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…
Read MoreCheck out past blogs and news!
I Just Joined the NF1-TED Study — and You Might Want To, Too I recently enrolled in the NF1 Tumor…
Read MoreNF Midwest is excited to share the Children’s Tumor Foundation’s new resource on the Genetics of Neurofibromatosis! Understanding the genetics…
Read MoreThis May, NF Midwest, and other NF organizations are coming together to turn awareness into action. We’re turning up the…
Read MoreRecordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…
Read MoreGuide If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the…
Read MoreNF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…
Read MoreManaging NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
Read MoreTopics:Basics of NF1, Research Updates, Genetic Counseling in NF, and Neuropsychology, IEP’s, and Social Work in NF.
Read MoreManaging NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
Read MoreJoin NF Midwest, NF physicians, the NF community, and others in celebrating the work of artist Rachel Mindrup and the…
Read MoreNeurofibromatosis and a Portrait of 1 in 3,000: Ashok Shrestha’s Transformation is a powerful exhibition featuring nine works of printmaking, drawing,…
Read MoreThinking about starting a MEK inhibitor like KOSELUGO or GOMEKLI for yourself or your child? Already on one and want…
Read MoreStarted in 2004, Camp NF (originally Camp New Friends) is a condition-specific camp for children with NF (including NF2-SWN and…
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