We Need Your Personal Letters for Congress
In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…
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Check out past blogs and news!
In February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…
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Which nonprofits have you wanted to help this year? You probably have a list of your favorites! Supporting those meaningful…
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If you’ve been paying any attention to NF research in the last several years you’ll have noticed that in clinical…
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Jay, 10 Mos. Our sweet baby boy Jay was diagnosed with NF Type 1 in May of 2018 at six…
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If you’re in the NF Midwest service area of Illinois, Indiana, Iowa, Kentucky, Missouri (east half), or Wisconsin and are…
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Great news! A new, detailed clinical practice guideline has been made available on the care of adults with neurofibromatosis type…
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NF Midwest, in collaboration with NF Northeast, has awarded Dr. Vijaya Ramesh from Massachusetts General Hospital, a grant for research in neurofibromatosis…
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This past February, NF Midwest brought volunteers to Washington DC to once again advocate for federal dollars for neurofibromatosis type…
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NF Midwest’s October 20th NF Symposium and iNFo Fair has three topics specifically related to Neurofibromatosis Type 2. The morning…
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We will have a unique presentation about improving executive functioning through play at NF Midwest’s October 20th Symposium and iNFo…
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This year we’re excited to have one of our NF Midwest clinic directors presenting for the first time at NF…
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NF Midwest is very excited to add a topic to our October 20th Sympoisum & iNFo Fair that has been requested…
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For adults with neurofibromatosis (NF) type 1, finding good care and doctors who are knowledgeable about the many complications and variations…
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Find NF CareGet the best care! Find an experienced NF doctor/clinic in the NF Midwest region.
Be iNFormedKnowledge is power! Learn and understand as much as possible about neurofibromatosis.
Community SupportDon’t fight alone! Meet others in the NF community to learn and share experiences.
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
