
Participants Wanted for cNF Natural History Study
Cutaneous neurofibromas also known as cNF are common among those with neurofibromatosis Type 1 (NF1). These begin tumor skin tumors…
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Cutaneous neurofibromas also known as cNF are common among those with neurofibromatosis Type 1 (NF1). These begin tumor skin tumors…
Read MoreFundraising is an essential part of keeping organizations operating to continue their mission of research, support, and advocacy. Events such…
Read MoreThe captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event…
Read MoreJoin us in supporting neurofibromatosis (NF) by participating in one of our Walk4NF events or by volunteering your time and…
Read MoreStarted in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
Read MoreA budget friendly way to plan your giving throughout the year. Monthly giving, also known as recurring giving, is a…
Read MoreBetween 25-30 million Americans are living with a rare disease according to the National Organization for Rare Disease (NORD). A…
Read MoreJanuary 2020 started the beginning of the Public Health Emergency (PHE) as a response to the increased need for health…
Read MoreI was diagnosed at age 2. I have cafe au laits, bilateral optic gliomas, a few cutaneous neurofibromas, innumerable internal…
Read MoreWith a few key words and the push of the enter key you can search pretty much any topic you…
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