New Study Results on Pain and Patients with Neurofibromatosis Type 1
Frank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…
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Check out past blogs and news!
Frank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…
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Massachusetts General Hospital is looking for adults with NF1, NF2, or Schwannomatosis to participate in a research study to enhance…
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NF Collective Launches New Website to Connect NF Patients with Doctors The NF Collective, a group of organizations dedicated to…
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Check out our Spring 2019 NF Midwest Newsletter! The highlights of this issue include… Page 1 Information on the new…
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The American Academy of Pediatrics has published an updated clinical guideline on the Health Supervision for Children With Neurofibromatosis Type…
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For many newly diagnosed NF2 patients the first question that usually comes to mind is “Am I going to lose…
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My name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…
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I joined the Army at 19 years old. I did all the training and arrived at my duty station. In…
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My sixteen-year-old son began getting café au lait spots at two months old. Our pediatrician at the time gave us…
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We had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
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My STRONG and POSITIVE Sarah was born with NF1. Sarah has had 12 surgeries, 14 chemo sessions, 58 MRI’s, and…
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My name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
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