NF Study of Genetic Mutations
Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…
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Check out past blogs and news!
Researchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…
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NF Midwest has awarded three $1,000 post-secondary academic scholarships and one new Distinguished Service Scholarship to four adults affected by…
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If you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…
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An update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…
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Are you a young adult living with NF and want to make a difference in your community? In addition to…
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NF Midwest recently provided funds to three NF providers through our Care Impact Grant Program. The NF Care Impact Grant…
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Camp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to…
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Online Harvard study to help teens learn Stress and Symptom Management Skills NOTE: PLEASE CONTACT THE RESEARCHERS DIRECTLY TO PARTICIPATE-NF…
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The Covid-19 pandemic has clearly had a tremendous impact on us all. Perhaps the most affected area, aside from medical…
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NF Midwest is proud to announce an upcoming webinar and resource produced by The NF Collective about transitioning to adult…
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The DOD NF Research Program (NFRP) is looking for consumer reviewers. The Department of Defense, Neurofibromatosis Research Program Overview The…
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